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A MyFibroTeam Member asked a question 💭
Marion, IL
September 10, 2019
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Answer Summary

Members overwhelmingly confirmed that heat sensitivity is a common fibromyalgia symptom, with many sharing that even brief exposure to high... Read more

Members overwhelmingly confirmed that heat sensitivity is a common fibromyalgia symptom, with many sharing that even brief exposure to high temperatures triggers flares, exhaustion, and body stiffness that requires ice packs or air conditioning to manage. Several members noted they experience sensitivity to both heat and cold, making summers and winters particularly challenging, while a few pointed out that certain medications can worsen heat intolerance and that perimenopause may also affect temperature regulation. A recurring theme was the frustration of losing the ability to enjoy warm weather and the need to carefully time outdoor activities, stay hydrated with electrolytes, and listen to the body's limits without guilt.

A MyFibroTeam Member

I am uber heat sensitive. I am in a flare brought on by a weekend in 90 degree weather. I am now wearing ice packs if I am outside for long.

September 18, 2019
A MyFibroTeam Member

I have struggled with the heat all summer. It is exhausting even going outside at all! It zaps my energy ( any I had) and my breath) I’m ready for fall and winter!

September 10, 2019
A MyFibroTeam Member

I am uk/Canadian and moved to an island called Cyprus in the Mediterranean to help with pain from cold etc.
Come July August when heat can be anywhere between 35-40 OMG!
Cannot go anywhere other than sit under the air con.
A lot of expats adjust to the heat, but it's a major trigger for me is summer, apart from heat, the brightness and noises, like kids on school holidays, tourists, as we live near a tourist destination.
I sound like a real humbug party pooper, never used to be.
I can't even go into a supermarket even if air con on, the while summer season sets my nervous system on high alert.
I did however faint once and they gave me an iv and I felt better than I had for ages. I took a photo of the ingredients, it was only electrolytes.
So in summer I make up a batch for myself, it does help.
Be careful though, that is for me personally, I would not advice anyone to take anything, even homemade.
Just saying it worked for me.
In my research I did see an article about hydrating the fascia.
Good luck folks. Hugs to all
Also women between 40-50 research perimenopause as that can play havoc with your heat system.

October 4, 2019
A MyFibroTeam Member

Me too--heat kills me

September 13, 2019
A MyFibroTeam Member

I have experienced with intense coldness all the time..specialty in my feets..it make me feel very frustrated 😔😪

September 11, 2019

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