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A MyFibroTeam Member asked a question 💭
Kyle, TX

Has anyone had a nerve blocker put in? What were the procedures you had to go through to get one? Has it helped? Where was it placed?

August 20, 2019
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Answer Summary

Members shared various experiences with nerve blockers and stimulators for chronic pain, with many finding them helpful for conditions like... Read more

Members shared various experiences with nerve blockers and stimulators for chronic pain, with many finding them helpful for conditions like headaches, bladder pain, and joint issues, though effectiveness varied by location and type. Several members described practical challenges including lengthy wait times (sometimes over a year), the need for specialized doctors trained in the procedures, and injections that could only be given a few times per year, with effects typically lasting three to six months. A recurring theme was hope and curiosity about newer procedures like radio frequency ablation, which burns nerve endings to block pain signals and may offer longer-lasting relief without steroids, with members eagerly supporting each other through the journey of finding what works best for their individual situations.

A MyFibroTeam Member

@A MyFibroTeam Member i hope they find something to help you. My injections also can only be dont a few times a years, they put me in twilight to do it.

August 26, 2019
A MyFibroTeam Member

I am not sure what a nerve blocker is but I have had nerve blocks done. They use a needle with lidocaine and sometimes another med mixed with it and they inject it into the area of the nerve and it numbs the entire nerve. I usually get them in my occipital nerves for chronic headaches. I want one done in my shoulder, but have to schedule an appt for that. I also used to get pudendal nerve blocks which are painful but so helpful.

Now, I do have an implant which is a nerve stimulator in my buttocks for my bladder pain syndrome. It is very helpful. Not sure if this answers anything for you, but Nerve Blocks are very helpful. Mine last anywhere from 3 to 6 months at a time.

August 20, 2019
A MyFibroTeam Member

I had a procedure called Radio Frequency Ablation done a couple months ago. It was done in my SI joints where i have severe arthritis. It made a huge difference. It burns the nerves so the pain signals cannot go to the brain. I would advise getting the RFA. I tried the lidocaine blockers and they hurt like the devil and didnt help at all.

September 2, 2019
A MyFibroTeam Member

Mine are done with freezing but you sure can feel the pressure when they inject the stuff. They say I have a very high pain tolerance as I rarely say anything so it makes me wonder what a person with low pain tolerance would do if they had our fibro pain! They also use an ultrasound machine to find the nerves which totally impresses me because when I look at the screen, all I see is like static when your tv looses its picture! Lol. These shots definitely work but I can’t wait to see how the coterization goes! I’ll keep everyone posted when I finally get in to get it done!!

August 28, 2019
A MyFibroTeam Member

I have nerve block shots every four months in my shoulders and I’d hate to think where id be without them. However there are different kinds I understand? The shots I get can only be given by an anesthetist and not many are trained in it. However my mother-in-law used to get them in her back right here in our little city whereas I have to travel to another city for mine?? I never understood this and I could only get mine once every three months at the earliest yet she could go every month! Anyway, this doctor I see has now been taught to coterize the nerve endings and this should last at least six months and there are no steroids so he is now doing that a lot and I am going to be his guinea pig for shoulders! He has done many backs successfully but hasn’t tried shoulders yet and he asked me last visit if I could be his test run and of course I agreed. He is so busy with the shots cause not many doctors are trained, that his waiting list is over a year just to see him then another 9-12 months to actually get it done! I’m really hoping this new procedure works for me so I have to go less often and I will no longer be getting steroids injected. Please keep your fingers crossed for me!!

August 25, 2019

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