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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Roanoke, VA

I am having my first major flare up in a long time. I'm used to small flare ups in one part of my body or another, but this is head to toe, the worst flare up I've had in years. Everything is swollen and in pain. My pain meds aren't enough. I can barely use my hands. They hurt so bad. Any advice on how to get through this?

August 14, 2019
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Answer Summary

Members rallied around someone experiencing their worst flare-up in years with both practical strategies and emotional support. Several... Read more

Members rallied around someone experiencing their worst flare-up in years with both practical strategies and emotional support. Several members recommended Epsom salt baths, alternating heat and ice, gentle movement like walking or swimming, and combining ibuprofen with acetaminophen while protecting the stomach. A recurring theme was the importance of not isolating during severe pain, reaching out for help from friends or doctors, allowing yourself to cry and grieve, and remembering that even the most intense flare-ups will eventually calm down.

A MyFibroTeam Member

Flare ups are a killer. They hurt us and remind us that even though we live with daily pain, it can get worse. The length of a flare up is different for everyone and sometimes every time. I have had flare ups as little as a day and as a long as 16 months. When your meds are not hitting the pain, you know it is a serious flare up. Best to take it as easy as possible, but move around. Staying in bed or sitting too long will make it worse. Warm baths and plenty of water to drink. These things won't stop it but it can help for the moment. Trying to take your mind off it will help a bit too. However, when I am in a bad flare, nothing takes my mind off of it. That is the evil of this beast. I do hope your flare doesn't stick around long. Gentle Hugs.

August 14, 2019
A MyFibroTeam Member

So sorry you’re going through this! You did a good job to post and ask for help. If you can, call a friend and make sure you have someone with you who can empathize, pray for you, and just be with you.

Definitely agree with the heat or ice.

Get out of any responsibilities you may have for the next few days or week.

Remember it won’t last forever. It may be super severe right now but it will calm down to a tolerable level soon enough.

Trust your gut. If you feel like you need a hospital, go.

Music can be really helpful.

Breathe. Walk if you can or gentle swimming. A physical therapist or massage person (who does it gently) can go a long way too, pending what is flared up.

You may feel tempted to stay in bed all day but try to move as much as tolerable.

Pray.

Sorry, that was a lot. Feel free to take or leave any of that. You know yourself better than anyone so go with your instincts.

Big hug

August 14, 2019
A MyFibroTeam Member

epson salt bath, magnesium supplement and Ibuprofen.

August 16, 2019
A MyFibroTeam Member

Try a heating blanket if you have one and if you don’t, it’ll be the best investment you ever made!! In the winter it totally works to sooth your throbbing body and although the summer is hot, if you have air conditioning on, I find that cold triggers it as well so again, the blanket is perfect!! Good luck!!

August 15, 2019
A MyFibroTeam Member

Rest, sleep and go to the hospital

August 14, 2019

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