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NHS Treatments

NHS Treatments

This is for my fellow Brits.

I'm struggling to get good advice about what is available on the NHS for controlling symptoms.

Does anyone have any experience of drug-free treatments funded by the NHS?

Thank you

A MyFibroTeam Member said:

It may be great for you, we all need different approaches which the medical profession struggle to understand. One size fits all seems to be their motto.

posted over 1 year ago
A MyFibroTeam Member said:

I was offered a group pain management course but I can’t be in groups due to anxiety so they basically said that’s all we have! The NHS seems to try to fit square pegs in to round holes most of the time.

It also said in the course notes that they don’t talk about the pain/distress or meds/supplements to help, it’s about taking your mind off it which may work for some but It’s a short term coping strategy at best.

Don’t know what to suggest, I’m still looking....,

posted over 1 year ago
A MyFibroTeam Member said:

Ok, all useful stuff. Thank you so much for your advice!

posted over 1 year ago
A MyFibroTeam Member said:

It is difficult to know. I am always in pain but you get used to it
Drugs make you sleep all day but I am never miserable or depressed and B50 definitely helps with that sort of thing.
Magnesium is antispasmodic so good for muscles including the heart. It also carries B6 into the cells. Most people on the UK are low on Magnesium apparently
You will see people on here at the end of their endurance but I never feel like that.

I found the regular Physio unhelpful because too much exercise makes it all worse
By too much I mean repetitions of an exercise.
I can do 3,5,10, 15, 20 but three is best!!!

edited, originally posted over 1 year ago
A MyFibroTeam Member said:

I have Consulted the system and declined drugs
They offered CBT (Cognitive Behavioural Therapy) which seemed to be for suicidal people so a waste of time for me
I am really not into breathing and mindfulness but some people seem to like it
I was also referred to something where they have group sessions Doc, Nurse Physio and Psycho but I have so many other things going on that Fibro s the least of my problems
I really don't want to sit in groups talking about Fibro or problems.
So I haven't been. It really doesnt seem my kind of thing but i would be interested in exercise
Right now this won't kill me but the other things could

I do take Vitamin D3 ( prescribed) and Vitamin B50 with Magesium Citrate
You coud talk to The Advisors at Natures Best on line
They are good quality products.

All in all there isn't much that helps or this forum wouldn't exist.

posted over 1 year ago
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