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A MyFibroTeam Member asked a question πŸ’­
Stockport, UK
June 10, 2019
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Answer Summary

Members connected over the challenge of living with unbearable chronic pain, sharing that most rely on a mix of medications like tramadol,... Read more

Members connected over the challenge of living with unbearable chronic pain, sharing that most rely on a mix of medications like tramadol, codeine, or pregabalin that only dull the pain rather than eliminate it, with some honestly admitting they turn to alcohol when nothing else helps. Several members offered practical suggestions for managing breakthrough pain, including compression braces, freeze gels, heat or ice, regular medication schedules, reducing sugar intake, calling for emergency help during severe episodes, and trying devices like Quell for nerve pain. A recurring theme was the emotional toll of constant pain, the frustration of doctors who don't fully understand or provide adequate relief, and the importance of finding whatever combination of tools makes daily life bearable.

A MyFibroTeam Member

I use all different kinds of things. I have compression braces for almost all of my joints. I have several ( 8 ) types of pillows. I use Tiger Balm a lot along with several different rubs. And if nothing works all I can do is pace and cry! I have noticed that drinking caffeine helps me some when my pain is high. I hope you find your thing soon.

June 12, 2019
A MyFibroTeam Member

I know all to well about excruciating pain!! I have muscular dystrophy and fibromyalgia and arthritis.And the pain is horrendous!! It gets so bad that I begged God to save my life and provide some relief and I turned to a therapist and psych.and found antidepressants along with Tylenol 3 and backlofen muscle relaxers and fiorinal for my migraines.The combination makes the pain tolerable.

June 11, 2019
A MyFibroTeam Member

@A MyFibroTeam Member

Don't feel bad about getting drunk I also drink alcohol as well because nothing really helps to ease the pain.

Also no Doctors understand or really want to help just bearing the pain isn't good enough, that's why I will be honest enough to admit that I drink alcohol to help ease the pain πŸ’–

Blessings Gentle Hugs πŸ’–

June 11, 2019
A MyFibroTeam Member

I take pain medication which dulls the pain a little, but it is always there (even with regular tramadol) I meant if it's screaming with pain time, I screamed solid for 10 minutes last weekend, the thought of going and waiting in A&E just seemed more if a nightmare as I couldn't even get comfortable at home, I ended up getting very drunk instead ! 😭

June 11, 2019
A MyFibroTeam Member

I just endure it I take cocodamol only if I have to and sleep if I can .
I use ibuleve gel and a hot water bottle and stay in bed

June 11, 2019

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