A MyFibroTeam Member
What brands and doses were effective?
Hi there can’t find the text adding me to your team but thank you. I’ve had fibro now for 6 years and this site has helped me so much.
My days seem to be different day to day- the best things for me are exercise, rest, meds and grandchildren. Here is my newest. He’s one week old. I have 5 grandchildren ❤️
Never heard of Skullcap. Does it work?
The Raynauds is a pain. My primary put me lowest dose blood pressure meds to help with opening up the blood vessels. Having low blood pressure to start with and a low heart rate from running it took months of alternating days taking it until my body got used to it and things leveled out. Once I was able to increase it to every night i started getting more relief. I have copper fit fingerless compression gloves for when it gets really bad indoors.
My hands were cold and the fingers were pale. even now my finger tips shrink so that I can't use my fingerprints to open med drawers. I still have this pproblem with the fingertips, but my hands are no longer cold.
I also have Fibro and restless legs. It’s so unbearable at times. I use a foam roller and sometimes I pound my keys to soften the muscle in my calf. I also use a cream for inflammatory issues. Or it all else fail I just get up and walk. Sometimes walking around my house as it usually happens at night. Good luck. You are not alone. 💖
Nobody ever mentioned tests or meds for it to me. They just make note and ignore. Sort of like restless legs. Nobody cares if I have it do bad I don't sleep. It's part of GM's.... ignore.
Are y'all talking about Raynaud's Syndrome for your hands? If so, yes I have it, and yes mine stings but only as the blood is returning. I have it year round, even in the heat of Texas summers. 🤗
Melatonin gummies and Jamieson's Magnesium Night help me to get to sleep. Sometimes I actually get 4.5 - 5 hours of heavier sleep after which I practice "mindful breathing" - which relaxes my body enough that I can get comfortable in bed (seven deep breaths in, hold for a bit then count to seven as I breathe out either through my mouth - and as I get more comfortable through my nose).
Spent one year thinking that I had Renalds syndrome but found out later that it was just part of mu fibro.
I have never heard of it, but would be interested in how it works. I don't have insomnia I sleep far too much . it is my only relief of pain. I just wish I didn't miss so much of what is going on around me.