Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Denver, CO

Because I am sick so much of the time, I have developed agoraphobia.
Has anyone else developed this fear of leaving the house or fear of driving?

If so how do you handle it?

May 10, 2019
 · 
Reactions

Answer Summary

Members connected over the isolating experience of agoraphobia that can develop from chronic illness, sharing how fear and pain often make... Read more

Members connected over the isolating experience of agoraphobia that can develop from chronic illness, sharing how fear and pain often make leaving home overwhelming. Several members offered practical strategies that have helped them, including starting with small victories like walking to the mailbox, using music or headphones to create a sense of safety in public spaces, exercising at home or in calm natural settings, forcing movement to prevent further physical decline, and finding motivation through children or necessary errands. A recurring theme was the importance of celebrating even tiny steps forward, being gentle with yourself during flare-ups, and recognizing that while pushing through fear is hard, complete isolation can worsen both physical and mental health.

A MyFibroTeam Member

I invested in Beats headphones so when I go out I can just have music on, and people don’t typically talk to me then because they see my headphones. It helps me walk around the grocery store, take a walk in nice weather, etc. it feels like I’m still in my cocoon but I’m out moving.

May 15, 2019
A MyFibroTeam Member

You sound like a warrior to me! And yes, people are nosey and judgemental! Remember, every day you look in the mirror, you are looking at your boss. Your life, your way...

May 11, 2019
A MyFibroTeam Member

Sherilynn, you are in CO too. Dr. Stuart Kassan in Lakewood is the best Rheumatologist . He was here in the forefront of CFS. & Fibro 25 years ago. Sometimes the wait to see him is long but when you do you become his only patient. I am very lucky in that his office isn’t far from me. It would be a trip for you but very well worth it if you could manage it. He has a free book on Amazon. I will post the link. Don’t let the moving boxes get to you!

May 11, 2019
A MyFibroTeam Member

I was really bad with it, but then I thought this is going to kill me. I could barely walk, but I knew I have to get it moving. I'm beginning to walk more. I've joined a gym, but I've only went twice, because if I'm not out of the house and my knee is hurting I'm not going. It's a constant fight. But sitting around is going to kill us, for sure. My body started hurting because I wasn't moving. I started thinking about blood clots in my legs, stiffening hip joints, weight gain, and my heart. That was my motivation. I am nowhere near in any kind of shape. The first time I went to the gym, I could barely make half a mile. And I had to sit down half way through. Week and a half later, I did one round of circuit training just to get the feel. I know that I have to build up my strength and endurance. Afterwards I did a half a mile in the treadmill, took a 6 minute break and did the other half. It's been one week. I'm hoping to go this Saturday, Sunday and Monday. In going to concentrate on 3 rounds of circuit training. Hopefully. Try your best to move in some kind of way, even if it's walking around your house. Socialization has never mattered to me. I'm happy being by myself. Best of luck to you.

May 10, 2019
A MyFibroTeam Member

Knowing why always helps with "how"

May 10, 2019

Related Questions

View All
A MyFibroTeam Member asked a question 💭
Cortland, NY

A MyFibroTeam Member asked a question 💭
Cortland, NY

A MyFibroTeam Member asked a question 💭
Rugby Warwickshire

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In