Me too. I think we need to move to Maui.

I just spent 4 weeks in Florida with my parents and I felt a whole lot better. I am now back in Indiana and after 1 day I am back to not feeling good. Cold and really hot bothers me.

Weather ups and downs are my worst. Cold damp in winter. Humidity in summer. In ohio so weve gone up and down 30 degrees in hours b4 thats the killer. Taje care!

I have emergency medical because of my life threatening issue 2 years ago. I will probably lose that in a month or so. Why can't someone figure this out or at least get out of the way for treatments that help. I don't understand the world at all. I would be dead without support, scary...however, I have no quality of life now! My pain let up over the last couple weeks but exhaustion upped it's game so that I can barely walk. I sooooo hear you and am so sorry for you too

I'm struggling too, primarily with extreme exhaustion. I can't believe this is not taken more seriously. I've seen three doctors in a week and I am like a stumbling, slurring my words, eyelid drooping drunk! I feel like I'm dying the slowest death possible and all anyone says is to eat well and exercise. I don't know if I can make it...