I am not sure what stage you are in with dealing with the changes and limitations we deal with when we are given this diagnosis. And without knowing exactly what you are going thru on a personal level, all I can do is offer you a bit of knowledge from my own journey. . . .and I hope there is something in this that you can gain atleast some relief from your present situation.
I know, that for me . . . . for about the first 8 to 10 years after my diagnosis, I was ocassionally plagued with uncomfortably terrorizing dreams about myself. . . .It started to get me extremely sad, angry, frustrated and some of them were downright heartwrenching, because I was "well" in the start of most of these dreams. . . .and then, slowly I would start losing things. Sometimes it was just my voice, but I DID feel like I had lost myself with this diagnosis . . .and in these dreams, I would end up having no voice, or having my legs collapse on me . . .or my face (or other body parts) suddenly melting or disappearing. . it would sometimes look like when back in the day, the film on the movie projector would get caught up and you would see it burn and melt on the screen. . . .
This was furing a time where I still had doctors wanting to continue looking for some other cause to everything. They knew it was fibro, but they always felt like something different was going on, as well. I grew so tired of these horrible dreams . . .but then I read something about how common it was for people to dream a lot about things like this happening to themselves when you felt inferior. . . .especially when it was to your former self. And THAT hit a chord with me -- I had been so bitter and pissed off that I was no longer able to have the energy or stamina (or even the incentive) to do what I could before!
I realized I was getting abslutely nowhere with worry, panic and just a myriad of thoughts of being "broken" . . . .in my mind, my body, and my soul! Then I read something, can't remember where -- but it outlined having to retraining my brain to be able to see everything for what it honestly WAS. It told me that I would figuritively have to mourn for and release WHO I WAS prior to my fibro. . . thus, it facilitated not being so caught up about who I was before compared to how fragmented I felt after my diagnosis. Once I " mourned" who I had been prior to fibro (and, boy, did it take a REALLY long time) I was able to fully appreciate much more about each day and what I was able to do. Yes -- and the dreams did stop!
Hope this might have helped!!
We sleep every nite to ocean waves
Don't eat to late.
Wow Lisa...that says alot and much to think about, I truly believe that you need to move on, not sure about mourning. Maybe turn the page?
@A MyFibroTeam Member,
I agree with Helen. I fall asleep when I listen to repetitive soft sounds.
Hope that helps you...