I find it hard things that would help us are not covered by insurance. It only helps the rich who can afford it. Being on disability and even before when I worked, I still could not afford what I needed and insurance would not cover what I needed such as massages etc. We suffer more due to the fact that financially we cannot afford the things that could make our lives much improved. I pray throughout each day to get me through the day. Just meeting my Medicare rx deductible is so hard that I have to cut back on groceries and other items just to afford my prescribed medication. I feel deductibles are way too high. It is not like we want to be ill. My husband is also having to meet his deductible as he is also on medications due to the fact he has blood clots and other medication needs. We have to constantly juggle our finances every single week. We are paying 2 doctors on the payment plan as we had to make payment arrangements. We arranged to pay on the 9th of the month. We sent out checks and the very next day we got a phone call wanting a payment over the phone. I did not respond as I know the check is already on its way. It was not even 24 hours after I spoke with them and already sent out a check as promised. The stress along with this is also a problem as we all know and deal with. They already know we are having financial problems and then to call the very next day to me is high pressure. I try to ignore it, but it is THERE! We do not spend any money we do not have to spend. The pharmaceutical companies need to lower prices especially if on Medicare and other type insurances. How much money do they need to make on drugs that have been approved for decades? I just had to get this off my chest as it is a constant in our lives. Does anyone else go through this almost on a daily basis?

I do think it would be nice to have access to all they have. We too struggle financially. The system is broken. We that need help can't get it. I just hope that their celebrity will bring awareness. I wish lady gaga would say more!!

I totally get where you're coming from, since I also have been trying to figure out how to make ends meet, whether I give up the things that help but aren't covered by insurance, or I just can't afford, with limited ability to work, and limited income because of my limited ability to work! Always seems like a vicious cycle that just never ends.
So, in regards to your question... Yes, it's annoying seeing all they can afford and knowing we don't get that luxury.The only 'silver lining' I can find, is maybe at least the part where these celebrities are bringing more awareness to our diseases, syndromes, conditions AND perhaps, will also contribute to furthering research for better medications, treatments, etc. could be the positive part we find in their exposure. Maybe, maybe not. but I'm always hopeful that those that CAN do something WILL. Keep on keepin' on! :) *gentle hugs*

hanks for all of your thoughts. In no way was I suggesting that celebrities like Lady Gaga have less pain then we do- but - and she said it herself in her documentary- she is quite privileged to have a massage therapisf on call and a chef and doctors at her disposal -
And i will take it a step father and add that she has a job and a well paying one at that- and if she could no longer work tomorrow she would be fine!
Whereas all of us seek to be struggling to eat and afford medicine and massages and keep a roof over our heads!
What would it look like if Gaga started even one foundation or one sustainable community?!
I envision little homes where we can live simply in chemical free, natural surroundings with good food and affordable massages -
Why is it we have to fight for disability and then for housing vouchers or whatever - or be homeless or in abusive relationships.
Or suicidal
Im saying i guess that bringing awareness is fine but we are way beyond that point now-
I mean ...
Its a disease
Now how about some rich people come up with some solutions instead of capitalizing on their celebrity with an en vogue illness awareness poster?!
Ugh
Sorry
Im pissed
She could change our lives with the amount of money she dresses herself in.
As an aside, I find this APP and this website incredibly difficult to navigate. It drives me nuts which is why most of the time I don't log in.
Feeling cranky.
Anyone else need a massage they can't afford?? Ha ugh

I bet they get whatever medication they want to help too and whatever tests they want. I also bet it didnt take 5 years to get a dianosis because im sure they can go to doctors every day of the week if they wanted to. It angers me as well.