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A MyFibroTeam Member asked a question 💭
Moose Jaw, SK

Hi everyone. Question about massage therapy. For those of you that use this therapy does it help and if so what kind do you get? Gentle, deep, cupping....? My massage therapist tortures me. It is so painful. She does deep and doesn't seem to have gentle in her training. sometimes it helps for a couple days, other times I feel worse. Any feed back would be appreciated. Thank you in advance.

February 20, 2019
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Answer Summary

Members shared mixed experiences with massage therapy for fibromyalgia, with many finding that traditional deep tissue work causes more pain... Read more

Members shared mixed experiences with massage therapy for fibromyalgia, with many finding that traditional deep tissue work causes more pain than relief, leading some to stop massage altogether in favor of gentler alternatives like warm baths, heating pads, stretching, and at-home electric massagers. Several members emphasized the importance of communicating clearly with therapists about pressure preferences, with one licensed massage therapist noting that personal experience with fibromyalgia completely transformed how she treats clients and recommending myofascial release techniques when done by skilled practitioners who truly understand the condition. A recurring theme was that everyone's body responds differently, so finding the right approach requires experimentation, self-advocacy, and the willingness to try alternatives like acupuncture, float therapy, gentle yoga, physical therapy, or TENS units when traditional massage proves too painful.

A MyFibroTeam Member

I’d like to concur with the person that mentioned talking specifically to your practitioner and if they do not lighten up then quit seeing them.
I will tell you I am a Massage Therapist and have been practicing for 27+ years. When I opened my first private practice some 22 years ago Fibromyalgia was just beginning its rounds in the medical field. I worked at length with a Physician who was doing much research at that time ... and I believed I was a qualified practitioner. All that to say that as fate or life or karma goes I was diagnosed some 10 years ago and having lived this journey has COMPLETELY CHANGED my care of Fibro-Friends who land on my table!!
So, at the end of the day there is something to be said about “the efficacy of ministering at the level of your suffering!”
No one knows this pain better than another sufferer.

February 21, 2019
A MyFibroTeam Member

I have acupuncture and she also does some massage and gresha (I'm probably spelling it wrong),
which is a message with a porcelain spoon. It releases deep down old knots and tissue/blood build up. It hurts when she does it, but man the relief is heavenly. then she does acupuncture, which I believe why I still have use of both my shoulders and arms.
hope you can find some relief. Also, I would try a different masseuse, before giving up massage all together.

February 21, 2019
A MyFibroTeam Member

Roxy, here's an analogy for your. When you get myofascial release, it's like untangling a bunch of chain necklaces. Try to put feeling into that. Your body has been holding an unnatural position and pulling on your spine, neck, shoulders and ribs. We have fascia throughout our whole body keeping things in place. When you cut up a chicken to cook, it's that real thin, tough stretch layer between the muscle and the skin. It's also what fails when people develop a hernia and you organs can push through making a painful buldge. Hope this is helpful.

February 20, 2019 (edited)
A MyFibroTeam Member

I think it hurts in a good way, but not everyone is good at it. You may need to try with a few different therapist to find the right one. I would ask people who get therapy who they like and why or, ask most nurses. They really have their finger on the pulse of any community. You should be sore the next day, not in pain. Wish you luck!

February 20, 2019
A MyFibroTeam Member

Massage makes it worse. I tried for 6 month regular appointments and had to stop. A cheap tens unit from Walgreens seems to have more positive effect when the pain is not really bad.

June 20, 2019

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