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Achieving A Quality Life With Fibro

A MyFibroTeam Member

We are each responsible for how we manage our own personal Fibro~hell.

With kindness and love for my Fibro~Friends,

Rather than what's not being done and staying the same,
I'd love to hear how you've successfully stabilised enough to have some quality of life
what are you doing?
Many Blessings :) x

posted January 20, 2019
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17 replies
A MyFibroTeam Member

I love education and I’m only 30! What else would I do πŸ€·πŸΎβ€β™€οΈ

posted January 24, 2019
A MyFibroTeam Member

I must agree with Jade. Stretching and decreasing stress. Retiring from teaching helped me so much. I took a ton of stress out of my life when I did that.

posted January 24, 2019
A MyFibroTeam Member

Light physical therapy definitely helps, stretching, and I've eliminated major stressors in my life including toxic ppl.

posted January 22, 2019
A MyFibroTeam Member

Pacing, accepting pain meds mixed with gentle exercise and healthy eating. Starting and continuing attending church and meeting other Christians. Avoiding toxic people. Helping others and being more compassionate.
Finally accepting it's a life long disability, letting myself be sad at times, but keep planning and looking forward. I'm 58 but feel 90 some days! I feel like my 'middle age' years have been stolen. My retirement period ideas of travel, long walks and visiting family and friends have all been quashed. So I make plans to do more close to home.
I've gotten to know my neighbours, occasional baby sitting and I take an elderly lady to a monthly hospital appointment, if I'm well enough. No pressure from anyone.
I wish you all a lovely day 🌸

posted January 22, 2019
A MyFibroTeam Member

I pace my life. I work but don't do days next to each other. I plan my days and am kind to myself don't give myself too much to do. I have 4 youngish children so have to be around and do things so try not to be hard on myself.

posted January 21, 2019
A MyFibroTeam Member

I poo pooed the diagnosis for a few years, didn't help. I moaned about it for a few years, didn't help. My ex husband did not understand my fibro at all and certainly didn't accept me sleeping or getting behind in the housework, etc. I worked 2 jobs back then and my kids were just leaving home, though I had fibro long before I was diagnosed. I got a divorce, moved 3000 miles away and started a new life where I could focus on me. My new husband tells me "naps are good," "there is always tomorrow to clean the house," etc. He is so supportive and encouraging and he makes my life easier. I read that waterbed help with the pain and he said ok let's get a waterbed. Going to the gym helps so we got gym memberships. Just having the pressure to be perfect lifted off my shoulders makes every day better. Knowing our limitations and stretching our boundaries a little at a time makes all of the difference.
May you each find the inner strength to keep up the good fight.

posted January 20, 2019 (edited)
A MyFibroTeam Member

So true

posted January 20, 2019
A MyFibroTeam Member

Yes we all going through varying degrees of what everyone has written about here......isn’t it just such an amazing blessing to us all to have this forum to write to..
Big hugs and thank you to everyone πŸ˜πŸ‘πŸ₯°πŸ₯°πŸ‘©β€β€οΈβ€πŸ’‹β€πŸ‘©πŸ‘©β€β€οΈβ€πŸ’‹β€πŸ‘©πŸ‘©β€β€οΈβ€πŸ’‹β€πŸ‘©πŸ’žπŸ’•πŸ™πŸ™πŸ™

posted January 20, 2019
A MyFibroTeam Member

Well hmmmπŸ€” I guess the biggest thing for me was not being available to listen to everyone's problems like I use to. Of course this came with great personal sacrifice! I rarely talk on the phone anymore. Trying to rid yourself of all the stress you can is a biggie for us FIbro Warriors! OH yeah....and my husband has significantly chilled in the last five years! Lol. On the flip side....I've been taking lyrica for the last thirteen years. It's had its ups and downs, but in the long run it has been a life saver for me. I guess learning your limitations is key. It's so hard for us though, because most of us were all overachievers. Were all in this for long run, so I guess we should try to learn the rules to the game early on. Lol. The only problem with that is there are no rules. Lol. There's always something new popping up with this disease. But the biggest thing for me has been to eliminate as much stress as I can and know my limitations. I wish you all Godspeed! Lori

posted January 20, 2019
A MyFibroTeam Member

My condition has worsened over time and with every significant illness, surgery or infection. I shower at night, primp the next day, keep a few outfits already put together, keep meds and misc stuff in a zip up lunch box for travel or need to go to ER, blanket and pillow in my car, car stays packed in summer for summer, with a ready to go back pack at the door. I also have a fun hat collection for bad hair days. This helps me be able to get out and not wear myself out getting ready.

posted January 20, 2019

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