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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Sleeping On Pillows

A MyFibroTeam Member asked a question 💭
South Lake Tahoe, CA

Does anyone else have problems sleeping on pillows? I have to use very flat pillows..because at the base of my skull ..I can not have any pressure on it...,I have lots of friends with Fibro who have the same problem.,.if you have it as well.,.what do you think it is? If I lay on my back ,on a pillow.,.and my head is on the pillow, for a extended period.,.it hurts a lot.,.have to lay on my side..and not have any pressure there.

January 8, 2019
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Answer Summary

Members opened up about their shared struggle with finding comfortable pillows due to fibromyalgia, with many describing how standard pillows... Read more

Members opened up about their shared struggle with finding comfortable pillows due to fibromyalgia, with many describing how standard pillows cause unbearable pain at the base of the skull, neck, and shoulders, often forcing them to use very flat pillows, sleep on their sides, or even abandon pillows altogether. Several members shared practical solutions that have helped them find some relief, including using small bolster pillows filled with poly beads, placing flat pillows under the upper back to keep the spine aligned, sleeping in adjustable beds or recliners, using ice packs for support and pain relief, and experimenting with Sleep Number beds set to very soft settings. A recurring theme was the complex and frustrating relationship between pillow comfort, sleep position, and related symptoms like lightheadedness when lying on the back, occipital neuralgia, heart palpitations, and the challenge of balancing neck pain relief with other health needs like CPAP masks or sinus issues.

A MyFibroTeam Member

Yes, the trick is to keep your head and spine aligned straight. I put a flat pillow under my upper back/shoulders and another pillow above that under my head. This keeps my spine aligned and less neck pain in the morning.

January 9, 2019
A MyFibroTeam Member

I have this problem. If I lay flat On my back I have pain in the lower part of my neck, the big vertebrae that is right across in line with your shoulders starts to hurt. I get shooting sensations up my neck into my head and sometimes get tingling or some other weird sensation I can’t describe in my left leg and arm. I have to sleep on a very flat pillow on my sides

October 16, 2020
A MyFibroTeam Member

Yes this is so me....I also have pain behind my ears....I was told it was fibro pressure points or occupital neuralgia headaches

Here's a link
https://www.webmd.com/migraines-headaches/occip...

January 11, 2019
A MyFibroTeam Member

I sleep with loads of pillows propt up x
i use to sleep without any pillows x

January 9, 2019
A MyFibroTeam Member

Yes it's horrible, sometimes like laying on bricks.
Having trouble figuring out what matress is going to help make me somewhat
Comfortable if that is possible.

January 8, 2019

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