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A MyFibroTeam Member asked a question 💭
Stockport, UK

It's weekend again and me and my partner hardly do anything together
We eat separately at different times, he's in bed as he had CFS and colitis
I'm usually in pain and tired too, on the couch with the TV for company.
I never know what to do at mealtimes or can't make any plans for the day/evening for us. I do go out sometimes for groceries or occasionally meet friends.
I start to feel really sad and low as the evening progresses as I realise I have to just get a sandwich and watch TV on my… read more

December 1, 2018
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Answer Summary

Members shared how fibromyalgia and chronic illness deeply affect their relationships, transforming once-active partnerships into quiet... Read more

Members shared how fibromyalgia and chronic illness deeply affect their relationships, transforming once-active partnerships into quiet routines marked by separate sleeping, limited intimacy, and constant pain management. Several members offered practical strategies that have helped them stay connected, including low-effort activities like watching movies together, cooking with a crockpot, finding fibro friends who understand the unique struggles, and maintaining emotional closeness even when physical intimacy becomes difficult. A recurring theme was the importance of patience, humor, open communication, and celebrating small victories like managing a movie outing, while also grieving the loss of the life and energy they once shared with their partners.

A MyFibroTeam Member

It does...Keith and I have worked with fibro and our relationship for 12 years...
Just yesterday because it rained ...I was unable to go with him to a funeral...because weather can bring me a symptom flare....we never know. He does know however that he is loved....he let's me know same....he is pro dr meds...I'm not and don't take any ...we are so different. He works nights I'm retired now from day employ....we have learned our body is not our heart and do what we can to have date time....we might cook together or go out....his hours are 12 ...6 days a week...I get lonely and do things on my own....but I'm happy and content....I keep lists of things I want to do and should do...it all happens in good time...be patient....create your life...

December 2, 2018
A MyFibroTeam Member

Weird question but do you have a crockpot? This has been my best friend as i have to cook for my whole family (6-7). One of my favorite things in this world ❤️

December 2, 2018
A MyFibroTeam Member

I’m sorry you are having troubles. It must be hard with both of you having chronic pain and issues. Maybe you can make plans that don’t require much effort like renting a movie or play a board game. Even laying down next to each other in bed to keep each other company. It’s a difficult thing, I pray things will look up for you. Blessings.

December 1, 2018
A MyFibroTeam Member

My partner is very understanding and supportive of me, it's not him I'm moaning about, it's the illness's effect on us both and the life we used to have together.
But, we have a greater understanding of each other now and it has brought us closer in some ways,bit just breaks my heart sometimes that we hardly get to have fun together any more.
You are right at SuzetteC85 we do watch a movie at home now and then at least xxxx. It took us a year but we actually managed to go the the cinema the other weekend, a matinee was better than planning an evening 👍 x

December 2, 2018
A MyFibroTeam Member

Me too ladies, I am going through it with my husband as well! He's been such a trooper though with his level of patience &understanding that I hate to add one more issue to our fairly new wedding vows! He works a lot, our kids are all grown and out of the house which leaves me home a lot by myself! I miss working, being normal and healthy so much...I hope to get some answers soon, especially since the latest issue we're struggling with is how this disabling disease has just started to affect our sex life :(

December 1, 2018

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