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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Hull, UK

Hi does anyone else have trouble with their saliva glands I have constant dry mouth when I wake up my tongue is bone dry I had a saliva gland tumour removed in June but I can feel some more lumps coming just wondering if anyone else as this problem thanks 🤗🌸

November 28, 2018
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Answer Summary

Members rallied around someone experiencing persistent dry mouth and salivary gland lumps after having a tumor removed, with many sharing they... Read more

Members rallied around someone experiencing persistent dry mouth and salivary gland lumps after having a tumor removed, with many sharing they also struggle with severe dryness in their mouth and eyes. Several members recommended practical solutions including Biotene mouthwash and spray, staying hydrated with constant water access, chewing gum, using warm compresses and massage for swollen glands, and trying Xilamelts or sour candy to stimulate saliva flow. A recurring theme was the strong suggestion to ask a doctor to test for Sjögren's syndrome, an autoimmune condition closely linked to fibromyalgia that causes chronic dryness, with multiple members confirming their own diagnoses and emphasizing the importance of getting proper testing and treatment.

A MyFibroTeam Member

Same here, dry mouth but I’m sure it’s from medication! Always have a bottle of water with me when I walk out the door, even if I’m just driving somewhere quick! I find chewing gum helps quite a bit too!

November 28, 2018
A MyFibroTeam Member

Never had a salivary gland that had to be removed. Was your mouth dry before the removal? My mouth is dry and so are my eyes. I used to use biotene mouth spray for moisturizing my dry mouth. Now I drink water or any liquids to help with my dry mouth. Medications seem to be the same factor for most of us. Sjogren's causes dryness! Dr could test for that! Gentle hugs to you, @A MyFibroTeam Member

November 28, 2018
A MyFibroTeam Member

Hey pet I have a constant dry mouth but I think it’s more to do with my medication, maybe you should get it checked out xxx

November 28, 2018
A MyFibroTeam Member

Me too! VERY dry mouth to the point where I feel like I have constant bad breath. I use Biotene also but I also carry a bottle of water with me. I have MCTD which includes Sjogren Syndrome. I have dry eyes too. Some nights I am so tired and I can’t close my eyes my eyes because they are so dry. I then have to use artificial tears so I can go to sleep. 🤪

December 1, 2018
A MyFibroTeam Member

Yep I do and am perscribed artifical saliva

November 29, 2018

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