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Burning Pain Feeling On Skin
A MyFibroTeam Member asked a question 💭

Happy Day Everyone!

I have a question; I recently started getting burning pain as my main symptom but it started happening soon after taking Cymbalta.

Question: could this be a side effect of Cymbalta or is this 100% the Fibro?

Thanks

posted November 7, 2018
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A MyFibroTeam Member

That stress could be lifelong trauma built up or it could have been an injury, surgery, etc. And your brain has literally confused itself and is sending out all sorts of fucked up signals.

Yes, I have had the burning skin. I have had days where if feels like my skin is chaffed. I have had days where I can barely hold a pot of water, I have had days where I wake up feeling like I have the flu for the 10th time this year, I have days where all I want to do is sleep, I have days where I wake up at 3AM and cannot go back to sleep, I have days where my arms go numb and I have had weeks where my mouth felt like I had a hot pepper in it. Awesome, right?

I am starting Cymbalta but I am titrating up VERY slowly. I take all the 4 pills out and just put one back in for a week, next week I will put two in and the third week, three and the fourth, I'll get to 4 pills. It is probably not the Cymbalta. It is most likely you are so freaked out over everything happening to you that your brain is getting even more confused. But it's not your fault, you're not crazy. Your brain is just mixed up.

I'm sorry this is happening to you. I truly am because I have been dealing with this for the last 10 months. But my neurologist literally said to me yesterday, I cannot come to her anymore because there is nothing she can do to help me other than recommend things like gabapentin, Cymbalta, etc that basically turn down the volume of our brains.

In theory, I think our brains are probably wired like someone in literal war combat...always wired and alert for danger. So we have to be careful, use meditation, keep stress out of our lives, say no to things we wouldn't normally say no to until we can get our brain out of this state of panic.

Hugs to you

posted November 7, 2018
A MyFibroTeam Member

Hate to break it to you, dude, but this is just another wonderful symptom of FMS. So I would like to give you a little info considering I am 10 months into this F'd up journey. I just got back from - what will likely be- my last neurology appointment. I had two doctors check me. One was the resident, fresh out of medical school who had witnessed several cases of similar instances of unexplainable neurological conditions, and the other, my seasoned co director neuromuscular neurologist who works hand in hand with Steven Glass at the Emory ALS Clinic in Atlanta (he's kind of a big deal). I have been given 4 EMGS, I went to Mayo Rochester, and I have seen over 4 reputable neurologists. They are all either dumb as a bag of rocks or my issue is so stealth that NONE of their fancy testing and major medical degrees can figure it out OR......drumroll....I have FMS or as the Mayo Clinic calls it, a Centralized Sensitization Syndrome (which encompasses many different unexplainable disorders).

After meeting with my neurologist yesterday, I flat out asked her, do you think I have FMS. She said, "hard to say...a lot of neurologists don't even believe in it..." She said it's possible but often times when doctors simply cannot figure out what's wrong with the person, they end up with the FMS diagnosis because patients are so desperate to put a name to what they have.

Hence the reason why the FMS symptoms has gone from the old Rhuematic list of myofacial pain to now a schlew of other symptoms with a more neurological basis such as pins and needles, muscle weakness, burning skin and a million other sensations such as crawling, buzzing, vibrating, humming, feeling like hot lava is in your veins, feeling like your feet are wet, feeling like you skin is sliced open, etc....ALL NERVE RELATED ISSUES.

The resident, who was much more compassionate said, "we believe you. your symptoms are very real but sometimes the brain gets so mixed up that it responds in such a way that it perceives everything as a threat and your body goes into this mode of trying to protect itself by sending out all sorts of signals that are basically totally mixed up." He literally said, "I know it sucks. But we just don't know enough about the brain to understand exactly why this happens but what we have learned is that most people who have these conditions have had some type of acute stress, trauma, etc."

posted November 7, 2018
A MyFibroTeam Member

i get that too but i would get it before I was on cymbalta. its especially bad after i shower but its not as bad as it used to be

posted November 8, 2018
A MyFibroTeam Member

I have the burning skin symptom all the time from fibro, i am not prescribed cymbalta and it is not a side effect of any of the medication i am prescribed so i think its the fibro.

posted November 7, 2018
A MyFibroTeam Member

I stopped taking Cymbalta bec of the floating feeling that I cannot deal with. But the burning feeling might be more of Fibromyalgia than from the meds. In the past year, I’ve had different kinds of symptoms that otherwise will just come in out of nowhere. I’ve had sudden sharp pain in my buttocks that I was rushed to ER, just to be told there is nothing they can find. The other day my throat just started hurting so bad that I cannot swallow anything. Thought it might be allergy or virus. Took many allergy and sore throat meds but it just got worse. But after I took Lyrica, it was fine the next day. So I think the burning might be another gift from Fibromyalgia. You might want to check with your doctor and update your meds. It helps to have a back up med, other than your maintenance, for flare ups. I take Savella everyday but when I cannot bear the pain I take Hydrocodone. For the tingling pains or when I suspect my nerves are going crazy, I take Lyrica, but not daily. Hope you find what can help you with the burning feeling.

posted November 7, 2018

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