Hi i have had fybro for around 13 years and have experienced the trembly feeling as if my insides are vibrating or like as if I have had a shock. I think this is from adrenaline imbalance, like a mild flight or fight reaction and for me it comes and goes. I tend to find that neuro problems come along in batches together. For example I am really sensitive to noise when I get the internal shaking and recently I have had really noticeable muscle jerks which have caused my arms, hands or legs to move involuntarily. I have never experienced these jerky movements before only mild annoying twitches in the muscles. I would love to hear if anyone else has had this symptom as I am worried this may be something else. My coordination is never great but since the muscle jerking started it is much worse. I manage to work full time although i feel like a zombie most of the time and would love to hear if anyone has any advice about how to improve the overwhelming tiredness that fybro seems to cause.

Mine happen more in the evening or right when I wake up.

Snap, Cc5... 90% of my internal tremors happen in the evening when I lay down.... drives me nuts! Currently happening every evening. .. it's awful! 💙

I have this. When I lauy down at night it almost feels. Like an earthquake or a train going by. I've had it some during the day as well. So frustrating

@A MyFibroTeam Member. I don’t have the dropping things going on but my arms and legs sort of feel like pulling, tugging, tingling, falling asleep sensation. A new sensation other than the muscle twitching all over. It’s gotten a bit better but it’s still there. I’m scheduled to see a neurologist in about 3 weeks and scheduled for a EMG test in December. I’m hoping to find some answers. I have a big feeling it’s just fibromyalgia. As I look back on my Fibro journey over the last 3 years, I have experienced all sorts of things that couldn’t be explained. Then when I look it up, it’s common in Fibro.

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I am having these problems now and I cannot figure out what it is. So if you find out what it is would you please let me know. Cuz I don't know if it's another disease or something and it is hard to explain to other people or my doctor but it is so annoying and I'm always dropping things. Thank you so much.

@A MyFibroTeam Member. You are right that it’s hard to explain what we feel. It may well be the same but it’s different feeling to us all. I am trying not to worry so much about the twitching since I have all the criteria for fibromyalgia including the tender points, and almost every symptom on the list for Fibro. However, I dont t have the extreme pain that I can’t move but I have muscular aches and soreness daily. As if I worked out hard at the gym the day before. I’ve read many people with Fibro deal with muscle twitching usually from overworked, tense muscles, and stress. Some of my muscles will ache more than others and my pain tends to move: ie one leg will hurt for a long time and then my arm, or my back but overall I can touch anywhere on my body and it will be sore, even If I scratch myself it causes pain. I’m just concerned with the twitching. I used to experience once in a while but they have been consistent over this last week, in different parts, but mainly my leg and knee area. My body feels more tense lately as well. I also started experience that buzzing sensation all over mainly legs. As of right now my insurance hasn’t approved a MRI but my doctors are working on a way around it. Hopefully I will have it done before I see a neurologist.

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We all may be feeling the same but interpreting it differently or feeling something different. The chills thing is what I feel right when the barometric pressure drops and I actually feel fluish. But i dont get the chills. But what I consider vibrating is literally like a faint current of electricity and I say that not bc it feel electric but bc it has to be neurological in nature and the nerve impulses move from brain to hands/feet. What i feel is literally like a buzzing/humming that runs from my elbows to my hands and from my knees to my feet and feels like my bones are vibrating. It is such an uncomfortable feeling.

Yes i experience the whole "if feels like when you get the chills but your body isnt moving"!!!! Its so annoying!!!! Drives me crazy!! Tends to happen to me right before i get intense pain start.

Fibro is a neurological disorder so anything is possible if it involves your circuitry. At least i believe so. This is why people always talk about weird things like buzzing/vibrating under the skin, skin feeling hot or cold, numbness, shooting pain, people feeling like they have bugs crawling on them. Muscle spasms, twitches, burning mouth, etc. just naming some i havw experienced and othes I’ve read. It’s definitely neurological and Im sick of neurologist not owning it. All they do is push you back off to a PCP who is totally out of their league when trying to understand these symptoms. Although I will say, mlst PcPs tend to be the most compassionate bc they’re spending all their time with us. Go see your neuro. Find one who specializes in neuromuscular so you can get all the major things ruled out. Neuromuscular neuros manage MS, Perioheral issues and other more serious things. They’ll do an MRi and an EMg most likely. Just bring your paperwork from testing you’ve already had so you dont waste time getting the same tests.