Does Anyone Use The Fentanyl Patch And If So How Does It Make You Feel? | MyFibroTeam

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Does Anyone Use The Fentanyl Patch And If So How Does It Make You Feel?
A MyFibroTeam Member asked a question 💭

So, my pain doctor has decided to put me on fentanyl patches. I have been on oxycodone 30 mg for about 2 years and am lucky if I get 1/2 hour of relief from it. The pain in between times I can take the oxy is pretty bad these days. I don't take the oxy's every 8 hours because I don't want to get addicted to them. I am very afraid of addiction. I have had many friends go through this and am making sure this does not happen to me.

The issue I have with the fentanyl patch is I am scared to… read more

posted September 26, 2018
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A MyFibroTeam Member

I agree, whatever will give you some relief, take it!! I was on the fentanyl patch for years and I wouldn’t say I ever got high but it sure conked me out!! Of course we kept upping it because this was in between my failed surgeries and settling in of my fibro and the pain was just too much. After I started getting nerve block shots, I felt I could do without the fentanyl so my doctor and I slowly started weening me off of it and I never had a problem! I’m glad I had it when I needed it but I’m also really glad I was able to get off it! Sure there are days I wish I was still on it but I’ve always been on oxy’s even with the fentanyl and that has always been the thing that helps me the most! Every pain clinic I’ve attended, they’ve always explained that- if you have pain, the drugs go straight to relieving it however if you don’t have pain, that’s when it goes to your brain and you get the high!! I totally believe this and live by this rule! I feel whatever one needs to survive in this pain filled life, do it! Everyone is different, everyone’s pain levels are different and everyone’s pain tolerance is different so we each have to do what works for us and only us!! Good luck! Hugs!

posted September 27, 2018
A MyFibroTeam Member

I don’t care what anyone says, fentanyl is dangerous. This is what is causing heroin addicts to OD (when this is added to the heroin). I’m not judging you but I am surprised a pain doctor would even give this to you. The medical community is moving away from writing scripts for any type of pain medication that is an opiate of any form for people with chronic pain. Chronic pain is much different than acute. Studies show this now. And when we are on opiates for a long time, we deplete our natural opioid receptors and being on opiates actually makes the pain even worse. This is why withdrawling is horrible. I know you are in pain. All of us are on this site. I do not think fentanyl patches are safe and yes, they are addictive. I really hope you will reconsider. And like you said, the oxy isn’t touching your pain. Some pain just can’t be alleviated and fibro nerve pain is tough to treat. I’m sure a fentanyl patch would make me feel like I could do back handsprings, hand stands and lift weights for hours bc the pain would be totally NILL but there isn’t any way I would take it bc that stuff is NO joke. Hugs to you.

posted September 26, 2018
A MyFibroTeam Member

I replied to your post days ago - but what I didn't put in my post I don't think you should worry about dying from fentanyl - it seems the death occur because of the "fake" fentanyl - the uncontrolled street fentanyl

posted October 10, 2018
A MyFibroTeam Member

I really don't think medication is dangerous if you know what you are taking, the reason you are taking it and understand the drug (if it has side effects, the dosage etc.) Once you start taking a medication and it is relieving your pain, then it is one that is helping. I know I have been on an assortment of pain medication over the years, some were great and helped but then they ran their course. I have also been on some meds that sort of worked, but they had horrible side effects. I am sure that others like myself have been on some meds and the dosages were either too low or way too high. I know doctors here are being harassed by the government about the type and amount of pain meds they are prescribing. When I am picking up my patches I have to return the exact number of patches that I received. I think it is disgusting, gross that I have to put each patch on a little square on a paper, 10 patches per page (after they have been worn they are nasty). Also, you cannot pick (pain meds that are narcotics) them up 1 day earlier then prescription states. It seems the government has gone way overboard on our side. It can be very frustrating at times.

posted October 6, 2018
A MyFibroTeam Member

Having the chronic pain of fibromyalgia is exactly the time to learn to think for yourself and de-stress in every way possible. Stress gives us pain. You are ultimately in charge of yourself and decide how much pain you want to suffer daily by not taking meds that will work for you, or relieve yourself of. No one else should decide for you how you treat your pain and don't accept any guilt trips as you are the only one who has to live every day in your body. Having to deal with the pain of our condition is a respectable illness in which to take pain meds for and test out what works for us to reduce pain to a functionable low percentile. I am practicing the meditation and alternative methods but still need my pain meds and will until I can be a lot better of a meditator lol. I support what @A MyFibroTeam Member said. Would you blame a burn victim for using prescribed medicine no matter what it is named if it is the only thing that relieves the pain? I would not. My body feels like it burns from pain on the inside so I will tell my doc the truth of what I feel and take what works and not feel guilty. Remember you can give a patch a trial run and take notes in a journal and do it at your own pace as you want to. There is no rush or permanant commitment. You are always in charge of what you take.

posted September 26, 2018

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