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Swelling
A MyFibroTeam Member asked a question 💭

Hi Everyone:
Most material I read on FM states that swelling is not a usual symptom and other publications say diffuse swelling is common with FM. When I go into a flare my knees and parts of my hands swell. Does anyone else have swelling when they’re in a flare or as a regular symptom of FM?
Thanks.

posted September 23, 2018
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A MyFibroTeam Member

I get a lot of fluid retention in my feet and ankles. I try to elevate them when I can which helps for the short term. My doc doesn't seem to deal with my fibro issues well and when I suggested a fibro specialist, that got shot down. He seems to think it is only about pain pills and I don't want any increaae or change
The swelling makes it hard to get nice shoes on a lot of then time.

posted September 24, 2018
A MyFibroTeam Member

I get edema quite frequently. The cardiologist ruled out heart issues. I’m not a diabetic. So I assume it’s the Fibro??

posted September 24, 2018
A MyFibroTeam Member

@A MyFibroTeam Member, I have had swelling in my calves, ankles and hands, not always during a flare. The Dr put me on a diuretic, sometimes it helps other times it doesn't. I also get swollen under eyes! Maybe this is why the new machines they've come up with are to vibrate the bottoms of your feet to get circulation moving to your head because the blood settles in the lower parts of the body. Was thinking of just trying the massager I have at home on my feet and see if it works. The Hummingbird therapy machine you put your feet on for 30 minutes a day is supposed to help get the blood circulating, but there were so many negative reviews I decided not to purchase something like that for $400. Hopefully the neck massager will help circulate my pooled blood in my lower extremities and my hands too. Hugs to you and hopefully this helped!

posted September 23, 2018
A MyFibroTeam Member

I have swelling in my hands and feet. I am also feeling numbness in two toes on both feet. The doc thinks it’s peripheral neuropathy but not associated with FM....I beg to differ. While in a flare up it is significant that there is no way it’s no FM symptom. I think there is a lot of learning left in the medical field around FM which in turn causes us to have undue suffering. With no specific testing and visually I look healthy...when I have energy for self care at least. Think I am going to have to start going to the doctor without trying to improve my appearance so he understands my everyday. He has known me personally and professionally for years so it might wake him up to my suffering....sigh 🤔

posted September 23, 2018
A MyFibroTeam Member

Yes I do mainly my ankles and they are very tender and painful to touch

posted September 24, 2018

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