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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Denver, CO

How long is the entire process from beginning to end? Would love if this wouldn't have hit me at such a young age. I have so many things I want to accomplish and this disease has made those dreams impossible. I have been down for 6 months now period switched my entire eating habits Ganda so many doctors and spent so much money just to feel like a lab rat and I swear some of the fibromyalgia medicines made me a lot worse and now I don't have a choice but to go on disability.. probably going to… read more

August 25, 2018
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Answer Summary

Members shared their experiences navigating the disability application process for fibromyalgia, with timelines ranging from two to three... Read more

Members shared their experiences navigating the disability application process for fibromyalgia, with timelines ranging from two to three years and nearly everyone reporting an initial denial that required hiring a lawyer to appeal. Several members explained the difference between SSDI (which requires sufficient work credits from the past 10 years) and SSI (for those without enough credits, which provides around $750 monthly plus Medicaid), with younger applicants often facing more scrutiny and longer waits. A recurring theme was the need for patience, thorough documentation from all doctors over the past decade, and the importance of seeking legal help early while leaning on family support during the lengthy process.

A MyFibroTeam Member

It took me 2 years from the time I filed to get ssi. I couldn't get ssd because I didn't have enough work credits. I have Medicaid though witch is a blessing. You need to file and as soon as you get denied which 95% of people do, then get a disability attorney to appeal it. I was 35 years old when I got it. I am now 52 and have had 2 phone appt with them and 1 in office appt to recheck to make sure I still need disability. Of course I still do so I haven't had an appt for several years now. Good luck. Hang in there. It is a long wait to get it so be patient. Make sure to get every doctor you have seen in the last 10 years to get papers from them. Any tests or just office visits. If you have anymore questions, just ask me. Hugs

August 26, 2018
A MyFibroTeam Member

Really no benefits in So. Africa. What happens when people rREALLY need it?
S.S.S. I guess every state have different rules. Here in Georgia you have to put down the last 15 years.its a real pain, but finally got it.
Good luck

August 29, 2018
A MyFibroTeam Member

The work credits they go back 10 years and figure out how much you have worked in those 10 years. I only worked 4 out of the 10 years so I did not have enough. In not sure how much you need to work to get ssd. I got ssi since I didn't have enough credits. I get $750 a month which is the lowest you would get. If you have enough credits, you get ssd which I'm not sure how they figure that out but you can look it up with your ss number. The benefit of ssi is you get medicaid which has been a lifesaver for me. Good luck.

August 27, 2018
A MyFibroTeam Member

How much you get depends on how much you paid into it. I’m not sure of your age but usually younger people have a harder time getting it. You can go online and figure out how much you would get (if you have enough work credits) they use to mail them yearly, now you have to go online to see.

August 26, 2018
A MyFibroTeam Member

It took about three years. I had two different lawyers. The first one was an idiot, but the one told me I had it, as soon as we left court.

August 25, 2018

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