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A MyFibroTeam Member asked a question πŸ’­
Bronx, NY
July 20, 2018
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Answer Summary

Members shared mixed experiences with pain injections for fibromyalgia and chronic pain, with some finding temporary relief lasting anywhere... Read more

Members shared mixed experiences with pain injections for fibromyalgia and chronic pain, with some finding temporary relief lasting anywhere from a few weeks to several months, while others reported little to no benefit. Several members described specific treatments that worked for them, including trigger point injections for shoulder pain, rhizotomies (nerve burning) providing 3-4 months of relief, ketamine infusions offering up to 8 months of reduced pain, and spinal epidurals for back injury. A recurring theme was that pain management is highly individual, requiring trial and error to discover what works, with encouragement to stay open to new treatments while being prepared for varying results and potential side effects.

A MyFibroTeam Member

I have been having shots for about 12 years. For me the effect is cumulative . The more treatments I have,the better the results. I think it depends on the treatment as well. I had trigger point injections years ago,which helped with the pain and loss of range of motion in my shoulders. I don't know anyone who does it where I live anymore. As I had posted previoudly, I am in a small group of fibro and MS patients that receive a new treatment that consists of an iv with a high dose of torodol and anesetic similar to when you are having minor awake surgery. It takes about 45 minutes and makes you a little high, but it seems to trick the brain into not receiving our screwed up pain signals.It works for about 4 weeks for me and I am very functional during this time compared to what I was previously. I have been doing these for about a year and although I still have days of fibro fog and still fight the fatigue, I do feel alot better.I do not know if this is available in the US,as I live in Canada, but it might be worth checking out if a local pain clinic offers it, If anyone's doctor is interested about this proceedure, I will pass on their info to my Doctor and see if he is willing to share his method.

July 20, 2018
A MyFibroTeam Member

I have rhizotomies, which is where they burn the nerve endings. I have had it done in several areas up and down my back. There is pain right after they are done, but then I get 3 to 4 months of back pain relief. I have also had several ketamine infusions which has given me almost 8 months of relief. I still have some bad days but it around a 6-7/10 on the pain scale as compared to always being at a 12 on the pain scale. The ketamine infusions are a newer treatment for chronic pain. I am very lucky my pain management doctor does them. I have also had anti-inflammatory injections that do very little for me. Hope that helps.

July 20, 2018
A MyFibroTeam Member

I think they help, but just for a few weeks. I have been doing research on Kratom and I understand it helps with Fibromyalgia I don't know and I would like for y'all to help me with the research I understand that it's like a coffee plant it's all natural, I am sick of meds and side effects, just looking for help, so if you don't mind please help me with the research, thank you all and prayers for all of us, love your friend Tubby πŸ’œπŸ’œπŸ’œ

July 20, 2018
A MyFibroTeam Member

Hi Tracey, I've had trigger shots on my hips and that lasted about 2-3 years. It helped temporarily. I had cortisone shots, both on my hands and ankles. It helped for a bit, but the pain is back. I also had B-12 shots on my hands and back, however, that didn't do much. I hope you are able to find a treatment that lasts and helps you! Hugs!

July 20, 2018
A MyFibroTeam Member

On the month that I do not get the fibro infusion, i get a spinal epidural to treat old back injury. I am finding it is harder to get (scar tissue) and doesn't last as long.

July 28, 2018

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