I have had Fibro since my late teens at the age of 34 all my hair fell out over a span of 1yr. It was the longest yr of my life. I went to see a dermatologist and I started getting steroid shot in my scalp anywhere from 30 to 50 needles injections each time after about a yr it started to grow back. It was so soft and new just like a small child’s hair I was never happier in my life but my joy didn’t last very long after 4 yrs of growing it all fell out again. I was devastated again. Of course I tried the shots again and some started growing back but very patchy apparently if your hair falls out twice it would not likely grow back. It didn’t. The word wig was the dirtiest most vial word I had ever heard when it was inevitable that I either wear them or go bald. There was white clumps of weirdly course hair and I called them pig bristles cause that is what it looked like to me. It took me years to finally accept what had happened. People would say oh your so lucky it’s not cancer so lucky it’s not blah blah blah. These words spoken from the heart of people I loved and was only trying to minimize the situation and make me feel better but every time I heard your so lucky I wanted to punch them right in the face. Now 23 yrs have gone by and I still don’t look in the mirror without hair on I never say wig. Now in the last five yrs or so I beginning to have fun with it and wear different styles different colours different lengths every day. People that I see regularly don’t even notice what hair I have on because they only see me as Janet not the girl with no hair under my hair. The point I’m trying to make is I hope that you don’t have alopecia but if you do please don’t let it fuck up your life. People that know love you because you are you and not because you don’t have your same hair. I hope to god you don’t have it. My hair was my crowning jewel and it was so hard to lose it but you accept what you can’t change and make the best of it just like this stupid disease you have to learn to work around it and still live your life to the fullest. Go see a dermatologist and he can either set your mind at ease or prepare for what’s ahead and you can start getting treatment for it so you stop the progression of it. I don’t mean to scare you or upset you. I just don’t want anybody to go thru what I did. The hair I have in my profile picture is a wig it looks pretty natural so I’ve been told wigs have come a long way since the fifties and you can wear any style any colour any length your little heart desires. I wish you all the the luck at the dermatologist. My prayers are with you

A good indicator of alopecia is that it falls out in circles and patches. Fibro myalgia is an invisible disease but alopecia takes away something very precious you can see it on the outside. It certainly doesn’t help your self esteem or depression especially when you have Fibro too. You just feel like what the fuck did I ever do to have this happen to me. I know I am so lucky not to have cancer sounds good to say to somebody sounds bad when it’s you they are saying it to

Yes my hair has been falling out for a couple of years. There is loads of it on the shower base after I’ve washed my hair. Myhair used to be very thick, which I think it’s why it’s so noticeable to me. People who’ve only known me the last few years say they can see nothing wrong with my hair. But maybe they’re just being tactful!

I am in the same boat menapause definitely accelerated the Fibro and my hair had been gone by then. What the heck? and life goes on

I have just started dealing with hair loss over the past few months. It's just a double blow with Fibro and now menopause. Makes me want to just cry every time I wash my hair. It's even worse because my BF has very long beautiful hair. I take iron and biotin it helped for awhile but ai feel like it's picked up again. Also gave a very tender scalp to the point I don't comb or brush it. So upsetting.