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Internal Leg Vibrations
A MyFibroTeam Member asked a question 💭

I have see a lot of people on here talking about how they feel like their limbs have internal vibration and i'm having issues with my leg going it and has been for about 2 weeks. I have noticed that my leg now feels really tired and weak, this is diving me nuts! Anyone out there with the internal vibrations, does your limbs feel tired and weak when the vibrations are happening? How long does this go on for? Any thoughts?

posted July 5, 2018
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A MyFibroTeam Member

Aye it's part of our body saying slow down and rest. We need a break . Always listen to your body.

posted July 5, 2018
A MyFibroTeam Member

I’ve upped potassium by eating bananas. Works for me plus massage.

posted July 6, 2018
A MyFibroTeam Member

I also get internal vibrations. I’ve had them for years, long before fibro diagnosis. For me the vibrations generally start at my feet and work their way up my body to my head. I also can hear a humming noise that gets louder and louder. I used to think the bed was shaking or there was an earth tremor but it wasn’t, it was me. No real idea what causes this. It’s like I have a mobile phone on vibrate inside me 🙄

posted July 5, 2018
A MyFibroTeam Member

Yes, I have what feels like vibrations. Just to be clear, there are a few distinctions here but all of which I have experienced so let me know which one you are talking about. 1.) I have a vibration sensation or maybe more like a humming sensation that occurs mainly in my hands and feet which makes sense because when you have nerve issues, typically the first place it's felt is in the most distal parts of our body. I have been checked for neuropathy and I have no signs of that. 2.) I also have what I can only guess is some type of weird muscle twitch that feels literally like something is vibrating directly under the skin. This type is more noticiable than the other type I described in my first point. With these, I can feel them but I cannot visibly see them causing any type of movement. 3.) The third type I get feels almost like a quiver but is isolated to larger muscle groups. This typically happens in my thigh muscles, sometimes my stomach and even my arm once. These I can see because they make the bed shake. My husband says he never feels them but they are strong. They remind me of what a shaking leg looks like after a hard workout. I have asked about those on here and other people get them and I've been told that they were told by their neuros that this was just another form of a fasciculation (greeeeaaaaattt... :( ) . The third type I described actually does make me feel worn out for a few seconds...almost like I was doing a workout or something. So I hope that helps. You'll have to let me know what type of the 3 best fits your descriptions. Either way, they are all stressful

posted July 5, 2018
A MyFibroTeam Member

yes and have had for some considerable time... started off in my leg now over most of my body too... i kinda tracked it down to a "restless leg" syndrome which has taken over other parts like my body as well.... the only thing which helps me is Tramadol... i know they are trying to phase opioids out but what can you do when nothing else works.... it's definitely connect to some nerve problem for sure ugggh

posted July 5, 2018

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