Does anyone else ever feel ashamed that you can't function the way that you once did? I don't know if it is because it is so difficult for others to understand or if it's the reaction from a lot of people in the medical community. I just sometimes am very hard on myself for not being able to fight harder.
Hi ,
I def have felt down about my limitations, esp as mom. Its so frustrating to not be able to do the things I used to do. I am learning to accept how things are for me know and have a deep appreciation for good days and anythings that i am still able to do for myself and for my family. The acceptance has made my life easier as I am geting help and feel less out of control by allowing ppl to help me out a bit. I try to stay positive and i do believe that everything happens for a reason and that God is in control.
We should make t shirts that say "I have fibromyalgia" and a long list of visible and invisible symptoms on the back to educate people.
Sell them and give the money to help fibromyalgia research/people in big communities. ???
Yes, I do a lot. I feel people view me as "lazy" because I need to nap all the time after work and spend most of my weekend resting to recuperate to start all over the Monday morning. I feel guilty not being able to do much activities with my friends and family. Other days I can also feel mad at my family for not helping more. Even if they say they understand I need to rest I feel they could do more around the house to make my life easier and to not have so many house chores to try to keep up with. I go through a lot of emotions with this disability.
Yes its all part of the reality of the impact fibro has on your life. The limitations the hardships even those you considered close or loved rolling their eyes or saying hurtful things as they refuse to accept you are ill is another. You have to accept the old you is gone, you now have limitations, you have to be open and honest with those you care about and dont be afraid to ask for help. You have to look at your life as emotion as well as physical strains can aggrivate your condition. So dont beat yourself up fibro isnt something you can control and its tough at times but its not the end its just an illness not a death sentence.
Yes! All the time. I used to be a very determined and hard worker. As I got order, and the fibro pain and fatigue worsened, I was told to use a cane. I absolutely hate using it because I feel that people look at me walking and don't see visible injury. I guess we just shouldn't worry about what others think and do what is best for us. Hugs...