A MyFibroTeam Member
I just got diagnosed a few weeks ago with Fibromyalgia. I have had scalp tenderness on and off for years. I've talked to a few of my doctors about it. No one has given me answer.
I hope that tgis isn’t what you have! My chiropractor told me that only 3-4% of people have scalp trigger points. Only 3-4% can feel them all the time! You’re in a rare group. I’m sorry that it means that you’re in pain pretty much all the time. 🤗
Oh no 🙈 they tested me for that , but I didn’t have it .. Tgis is horrendous pain 🙈 So hoping that you have the right diagnosis 💟
I have the same symptoms and was told by my GP that it is trigeminal neuralgia. I take Carbamazepine/Tegretol 200mg twice a day for it. It tends to flare up when i am really stressed and have been given morphine for the flares.
Wow thank you. I had my hair blonde last time and I couldn’t have the lovely head massage , as my scalp was killing me 🙈💟
The only thing that seems to help me is washing my hair often, like every other day, or every 2 days max, and using a shampoo with menthol or mint. I am using Shea Moisture brand, Jamaican Black Castor Oil Strengthen & Restore Shampoo with Shea Butter, Peppermint & Apple Cider Vinegar. It is Sulfate Free & Color Safe. I get it at Target. Hope this helps somebody.
Dr’s don’t have answers to most of our symptoms that frequently chance. Months with migraines, eye sensitivity, pressure and scalp sensitivity.
So we love each day with new pains.
What was his relief suggestions
My neurologist diagnosed me finally with occipital neuralgia
Yes. They SHOULD
There is a doctor at my clinic who poo poo's the "even my hair hurts" comment. He's not a fan of Fibro, but I remind him that I went to a Rheumatologist in another city and never once used the 'F-word' and he came back after all the testing etc and said "What you have ,young lady, is something called Fibromyalgia. Here are my recommendations and I will have you and your husband watch a video that helps family members understand what it is and how to live with a person with it."
Maybe the PA at my clinic should watch that video. 😍