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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I try to explain and i feel like im not getting anywhere

April 30, 2018
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Answer Summary

Members deeply related to the frustration of feeling dismissed by doctors when trying to explain fibromyalgia pain, with many sharing that... Read more

Members deeply related to the frustration of feeling dismissed by doctors when trying to explain fibromyalgia pain, with many sharing that while some GPs are supportive and willing to learn, rheumatologists and specialized pain clinics tend to provide more effective care and validation. Several members recommended practical resources, including The FibroManual by Dr. Ginevra Liptan, seeking out specialists who understand trigger point diagnosis, and exploring integrative treatments like cupping, dry needling, and mental health support to address both physical and emotional pain. A recurring theme was the critical importance of finding knowledgeable providers who take fibromyalgia seriously, setting boundaries with unsupportive people in your life, and seeking community support when feeling isolated or unheard.

A MyFibroTeam Member

I do read a lot, anything to get my hands on. I have found the following book, that is the best I've found so far. It is a step by step guide, written by a doctor who suffers from FM. Her research and knowledge is very detailed. The book is written in a easy to understand language and process. You can get it at Amazon.
The FibroManual: A Complete Fibromyalgia Treatment Guide for You and Your Doctor Paperback , by Ginevra Liptan (Author)
this is the best book I

April 30, 2018
A MyFibroTeam Member

I go to the Luthern Spine Center and they have no problem diagnosing FM. There are nerve trigger points that are VERY easy to see if someone has fired up nerves. Someone without the condition has no problems in those areas. Trust me, I was so scepticle that it didn't hurt other people when you would squeeze or just touch the inside/ and outside knee, that I squeezed 4 other people's side area by their knees, and it didn't hurt them at all. I was astonished and I about fall to the ground when mine are squeezed. If your docs are not focused on that, go to a specialist that deals with the entire pain (physical, mental and emotional). It will change your life!!!

May 1, 2018
A MyFibroTeam Member

My gp is brilliant. It depends on the gp.

April 30, 2018
A MyFibroTeam Member

Having non-supportive partner adds additional stress on you, and its emotionally draining.
If the person loves you truly, they will try to educate themselves about your condition and help you...otherwise....

May 1, 2018
A MyFibroTeam Member

@A MyFibroTeam Member
Yes that would make it hard. You need to set boundaries such as if you are going to speak to me with only negative comments tell him to keep them to himself and not comment at all.
You can also walk away when he speaks to you like that.
Here for you

April 30, 2018

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