I’m starting to think I could have Lyme. The symptoms of Lyme are similar to fibro but the problem is getting it diagnosed. Most tests you GP gives are usually negative, you have to find a Lyme literate doctor....and they are hard to find. Has anyone here been tested for Lyme?
From what I’ve read a spinal tap is not a good way to check for Lyme. It’s invasive and not accurate. If or when I find out I have I will go with holistic over antibiotics. I’ve read so many stories about people that were misdiagnosed with fibro when it was Lyme...and now they are much healthier. I don’t know why they can’t come up with a test that is 100 percent accurate. Also from what I’ve read several people that have gone to Lyme literate doctors were also told they didn’t have Lyme when they did. I joined a Lyme group and it blows my mind what some people had to go thru to get the right diagnosis 🙁
Every new doctor I have visited always checked me for Lyme because of my symptoms. They usually like to run their own tests regardless of my previous labresults.
@A MyFibroTeam Member, so do you have Lyme? From what I’ve read almost everyone that has Lyme was diagnosed with fibro first 🙁
I was thinking I had a mole until I really worked on removing it because it felt like something was pinching me and it started to grow! I showed my PC doctor and he said it was a mole too. To cut a long story short, I pulled at it and it came off and had little legs and was fat from sucking my blood! Ewww! Still makes my flesh crawl! I couldn't get the stinger out so it's still itching and turning black in the area.
@A MyFibroTeam Member, what tests have they run? From what I’ve researched most people with Lyme had certain labs run them but it’s very expensive. Insurance won’t cover it