Has Anyone Thought You May Have Lyme? | MyFibroTeam

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Has Anyone Thought You May Have Lyme?
A MyFibroTeam Member asked a question 💭

I’m starting to think I could have Lyme. The symptoms of Lyme are similar to fibro but the problem is getting it diagnosed. Most tests you GP gives are usually negative, you have to find a Lyme literate doctor....and they are hard to find. Has anyone here been tested for Lyme?

posted April 10, 2018
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A MyFibroTeam Member

From what I’ve read a spinal tap is not a good way to check for Lyme. It’s invasive and not accurate. If or when I find out I have I will go with holistic over antibiotics. I’ve read so many stories about people that were misdiagnosed with fibro when it was Lyme...and now they are much healthier. I don’t know why they can’t come up with a test that is 100 percent accurate. Also from what I’ve read several people that have gone to Lyme literate doctors were also told they didn’t have Lyme when they did. I joined a Lyme group and it blows my mind what some people had to go thru to get the right diagnosis 🙁

posted April 10, 2018
A MyFibroTeam Member

Every new doctor I have visited always checked me for Lyme because of my symptoms. They usually like to run their own tests regardless of my previous labresults.

posted April 10, 2018
A MyFibroTeam Member

@A MyFibroTeam Member, so do you have Lyme? From what I’ve read almost everyone that has Lyme was diagnosed with fibro first 🙁

posted April 11, 2018
A MyFibroTeam Member

I was thinking I had a mole until I really worked on removing it because it felt like something was pinching me and it started to grow! I showed my PC doctor and he said it was a mole too. To cut a long story short, I pulled at it and it came off and had little legs and was fat from sucking my blood! Ewww! Still makes my flesh crawl! I couldn't get the stinger out so it's still itching and turning black in the area.

posted April 10, 2018
A MyFibroTeam Member

@A MyFibroTeam Member, what tests have they run? From what I’ve researched most people with Lyme had certain labs run them but it’s very expensive. Insurance won’t cover it

posted April 11, 2018

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