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Shingles

A MyFibroTeam Member asked a question 💭
Lakewood, CO

Has anybody experienced outbreaks of shingles secondary to there fibro?

March 10, 2018
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Answer Summary

Members shared painful firsthand experiences with shingles alongside fibromyalgia, describing it as excruciating pain that doubles their usual... Read more

Members shared painful firsthand experiences with shingles alongside fibromyalgia, describing it as excruciating pain that doubles their usual fibro symptoms and often brings them to tears, with several emphasizing that the combination is almost unbearable even with strong pain medications. Many community members described shingles as being triggered by stress and lowered immunity (common in fibro sufferers), with the virus reactivating from dormant chickenpox, and several mentioned that their outbreaks forced them to finally stop and rest after pushing through exhaustion and emotional strain. A recurring theme was strong encouragement to get vaccinated, with members discussing both the older vaccine and the newer Shingrix vaccine, though one member noted concerns about a lawsuit related to vaccine side effects.

A MyFibroTeam Member

Oh yes. I had the vaccine, so I thought I'd never get it. Then late last Sept I got them on the right side of my back. Talk about misery. Fortunately, there was an effective anti-viral that shortened the time I had them and I didn't get any nerve damage. Next week.I'll be getting the first shot of the New shingles vaccine, Shingrix, which was approved here and is 95% affective. I hope this information helps. If you want to know more, just click on my picture and ask.

March 10, 2018
A MyFibroTeam Member

One of my teammates @A MyFibroTeam Member is currenty experiencing this mayb she has some advice.

March 10, 2018
A MyFibroTeam Member

@A MyFibroTeam Member Thanks for thinkin about u, or THANKS, for puttin ur business out there. Lol!

Its good to know u can get the vaccine within 72 hrs of onset. Thanks for spreading ur knowledge my sweet friend!

Glad ur doing better!
♥♥

March 18, 2018
A MyFibroTeam Member

@A MyFibroTeam Member hi Kris yes I've just got over shingles. It's not secondary to fibro, but being run down, and stress can trigger it. But you can only get shingles if you have had chicken pox. Shingles is a secondary illness from chicken pox. The shingles virus is left behind in a dormant state, and in some people will never appear. Fibro sufferers are definitely more prone to it as we have higher stress, therefore lower immunity. I couldn't get the vaccine as it needs to be given within 72 hours of onset and I didn't see doctor for almost a week because I thought at first I was in a bad flare, and the rash was at the back of my head and neck and felt like bites. The doctor just gave me some lotion (which didn't help at all!) and said rest and take extra Tramadol for pain. Calamine lotion worked best and antihistamine for the itching. I am very thankful it didn't spread down my body, I know that is even more painful. Did you ask this question because you have shingles or because you are looking into the vaccine! @A MyFibroTeam Member thanks for thinking of me 😘

March 18, 2018
A MyFibroTeam Member

I got shingles just before I got fibro. It was shingles, Epstein’s bar, then fibro.
Shingles is the worst!!! Worst pain I have ever had.
But I will not be getting the shingles vaccine. The vaccine can actually cause a shingles outbreak. There is a class action law suit going on right now for people that have received the vaccine with negative side effects.
I hope I never get it again and I hope no one here gets it either!! ❤️❤️
xxxx

March 11, 2018

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