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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Toronto, ON

The last time I went to my GP she gave me a script to have the shingles vaccine. I have know a number of people who contracted shingles and it sounds absolutely awful for those without FM or other chronic illnesses, so I can imagine it would be much worse for people with FM.

Anybody here have the vaccine? if so, how was it? Were there a lot of bad side effects?

I'm interested to know what others' experiences have been as I still have not gone to get it done. I've been in a flare and don't… read more

October 25, 2018
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Answer Summary

Members strongly encouraged getting the shingles vaccine after sharing firsthand experiences of how devastating shingles can be, with several... Read more

Members strongly encouraged getting the shingles vaccine after sharing firsthand experiences of how devastating shingles can be, with several describing months of severe nerve pain, burning skin, terrible itching, lasting neuropathy, and significantly worsened fibromyalgia symptoms that made it one of the worst experiences of their lives. Many members reported minimal to no side effects from the vaccine beyond temporary soreness at the injection site, with several noting they received it during a flare without issues, and emphasized that the newer Shingrix vaccine is over 90% effective compared to the older version's 50%. A recurring theme was that while the vaccine doesn't guarantee complete protection, it can greatly reduce severity if shingles does occur, and the peace of mind and potential prevention are absolutely worth it given how stress and autoimmune conditions make fibromyalgia patients particularly vulnerable to shingles outbreaks.

A MyFibroTeam Member

I never got the shingles shot and one of my biggest regrets Ever!!! had shingles from Nov of 2017 to April of 2018 and it has left me with Neuropathy in my foot. It was the worst 5 months of my life, it the worst pain ever and exasperated my Fibro terribly. If it weren’t for my husband I don’t know what I would have done. Pleeese get shingles shot.. there’s no guarantee but it’s better than not. You can only get shingles if you’ve had chicken pox when little.. that virus stays in our bodies. Shingles is contagious.. my husband had never had chicken pox so he didn’t catch it. I had to stay in the house for 5 mos. my case was severe. It’s extremely hard for me to even talk about still. It’s been 6 months since, and I still feel effects.. meaning.. Neuropathy, and weakness, and my Fibro getting worse. Pleeese get shingles shot💜💜💜!!!

October 25, 2018
A MyFibroTeam Member

The shingles shot that is available now is a new one and supposed to be much better than the old one. My doctor told me it is cheaper to get it at Walgreens than for her to give it to me so she wrote me a prescription and my co-pay is $25. I haven't gotten it yet but I'm going to because I had shingles about 8 years ago and they were a nightmare.

October 25, 2018
A MyFibroTeam Member

Thanks to all of you for your answers and encouragement. Glad to hear there are little to no side effects. I waited only because I’m in a flare and didn’t want to make it worse. I did get the prescription for the new shingles vaccine. I feel like I should run out and get this now! I will do it this weekend 💕

October 26, 2018
A MyFibroTeam Member

I had the vaccine a couple of years ago because I decided I didn't want shingles jangling my nerves along with fibro.

The cost of the vaccine is a little pricey, but cheaper than the meds you'd need if you got shingles and worth every penny to avoid (or greatly decrease) the pain of shingles.

I had no after-effects except peace of mind knowing I had one less thing I'd have to endure.

Hugs
Jan

October 25, 2018
A MyFibroTeam Member

Olga Soo glad to hear you’ll get this weekend👍🏻💜🦋💜!

October 26, 2018

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