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I hear people speaking of flare ups, but for me, the pain and fatigue never leaves. Granted it is much worse at times, but it's never gone away, not even for a second. It seems the more time that goes by, the worse the pain and fatigue get. Sometimes the fatigue is so bad that I feel like I'm going to literally fade away. It's hard to describe if you've never had it like that. Is this the case for anyone else and what do you do for the pain/fatigue? My other problem is that because of the… read more
Answer Summary
Members shared deeply relatable experiences with living in constant pain and fatigue rather than experiencing distinct flare-ups, with many... Read more
I get the same thing I cannot sleep because of the pain I'm lucky if I get 2 hours of sleep and I consider that good sleep but I am in constant pain I never get any relief I thought moving to the South would help but it didn't my condition is much worse when I go up north to visit in the winter time the cold in the heat just kill me
@A MyFibroTeam Member, fibro doesnt show on scans its hypersensitivity due to nerve endings in blood vessels throughout the body being in a state of constant over activity. People with fibro seem to have a huge amount of these nerve endings which non sufferers dont. The high state of activity and huge amounts of these nerves cause the pain and hypersensitivity. There has been numerous public releases stating fibro does show on blood tests as the markers can be identified now. DNA tests now show fibro now as well so it is classed as a disease not a neurological disease. Now any competent doctor could tell you that, so you need to get some research done to clue yourself up and go back and get the pain meds you obviously need. I hope this helps.
My pain is never 100 % gone..it just varies in severity. Some days are worse than others, some hours are worse than others!! Some times I feel like I was hit by a dump truck ....Sleep is a big problem.. Both falling asleep and staying asleep . I did a sleep apnea test at the hospital over night and I do not have sleep apnea.
Wow, I just feel so bad for all of you. I see I'm not alone in the pain being ALL the time. Thank you all for your input and I will be praying for you. xox
@A MyFibroTeam Member
Thank you. I need to find a doctor here (in lufkin tx) who understands fibro
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