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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Baltimore, AL

Anyone else get random muscle twitches and numb feeling in different parts of the body I notice it most often when I'm sitting still or trying to go to sleep. I've had all the tests done MRI nerve conduction and I've been told that a lot of people with fibromyalgia have this is this true

February 17, 2018
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Answer Summary

Members overwhelmingly confirmed that muscle twitching and numbness are common fibromyalgia symptoms, sharing experiences of twitches in the... Read more

Members overwhelmingly confirmed that muscle twitching and numbness are common fibromyalgia symptoms, sharing experiences of twitches in the face, hands, back, and jerking sensations when trying to fall asleep, with some describing electric shock feelings in the neck and shoulder. Several members discussed medications like gabapentin and tramadol, noting that gabapentin can help fibromyalgia symptoms but may cause muscle jumping as a side effect, while many expressed frustration that most fibromyalgia medications cause weight gain which worsens pain. A recurring theme was the unpredictable and sometimes embarrassing nature of these symptoms, the need to explain them to others in public, and the ongoing search for relief through heat therapy, hot tubs, infrared saunas, and heating pads.

A MyFibroTeam Member

My rheumatologist gave me Gabapentin after 2 weeks I went off of it I started gaining weight which is just as bad as the pain because as soon as you start to gain weight your body hurts even more almost every medication they give you for fibromyalgia makes you gain weight the only thing I take 2 Advil in the morning with one 50mg Tramadol and that's it and for me that means no weight gain and no real side effects

February 17, 2018
A MyFibroTeam Member

Yes in my face and hands and back.

February 20, 2018
A MyFibroTeam Member

Yes. Sudden muscle twitching, numbness in all extremities.

February 18, 2018
A MyFibroTeam Member

yes. I get numbness in different parts of my body all the time. I also get twitches or jerking when i am trying to relax to go to sleep. I have had like a electric shock feeling out of the blue usually in between my neck and top of my shoulder that makes my arm jerk. Isn't fibro fun. Lol. Crazy symptoms and always new ones sprouting up. After 30 years, you would think that i would have had all the symptoms of fibro but no, i keep getting new ones. I hope you have a good weekend.

February 17, 2018
A MyFibroTeam Member

Yes I get twitches and numbness on front of shins on and off - almost like a rubberband springing feeling. Horrible aching in my hips at night and the bottom of my feet/heels - it's enough to drive you mad. I jump in a hot tub or infared sauna - helps a bit but I have to sleep on a heating pad nightly. This is all new for me - just diagnosed in December - it came out of no where. I still think it was 3 surgeries in one year and a very stressful year. Praying for relief for everyone here!

February 18, 2018

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