Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question πŸ’­
Leicester, UK

I completed the forms and sent all the documents they requested with it to apply for Attendance Allowance
Over a month later I have just received a letter informing me I am not entitled to it because, quote
"To get Attendance Allowance you must have a disability which means that you need, right through the day, frequent attention with your bodily functions, or continual supervision to avoid substantial danger to yourself or others ; or, at night, repeated or prolonged attention with your… read more

January 19, 2018 (edited)
 · 
Reactions

Answer Summary

Members rallied around someone whose Attendance Allowance claim was denied despite needing help with daily tasks during fibromyalgia... Read more

Members rallied around someone whose Attendance Allowance claim was denied despite needing help with daily tasks during fibromyalgia flare-ups, with many expressing frustration that the system seems designed to make people fail. Several members strongly recommended contacting local council benefit advisors who specialize in helping with claims and appeals, noting these trained representatives will come to your home, fill out forms correctly, and even attend appeal hearings, making them far more effective than Citizens Advice. A recurring theme was the unfairness of having to fight for deserved support when living with an invisible illness like fibromyalgia, especially since assessments often miss the reality of bad days when someone cannot leave bed or demonstrate their true limitations.

A MyFibroTeam Member

Your local council forum has representatives whose main job is to help people like us. They are trained in all areas of benefits claims and will inform and advise until your claim is complete, they even come to your appeal if you dont get your award. Use them they are fantastic, the forms are set up so you fail, the assessments are set up so you fail, so use the services the council provides, they will even fill in the forms and send them for you. I hope this helps.

January 20, 2018
A MyFibroTeam Member

Thanks for that info. I know there are a few different names for things but the reason I went for the Attendance Allowance was because I was too old for the other one, apparently after you're 65 you have to claim for the AA and I'm 67 now. I'll go online and have another look. I read something a while back about fibromyalgia now being accepted as a disability, but it was saying that although it has been recognised its still very hard to get any help and you have to fight for it. That isn't right at all but it seems that it's true... Talk about discrimination! It shouldn't happen in this day and age. πŸ˜•

January 19, 2018 (edited)
A MyFibroTeam Member

Thats what i was going to ask have you applied for pip? I've got my forms in, I"m waiting to hear now. Xx

January 19, 2018
A MyFibroTeam Member

Citizens Advice are very helpful and most have special "Benefits" workers. also if you cant get in to see them they often will anser some questions on the phone and help u fill in claims forms if necessary coz u dont always get long to turn them around

January 21, 2018
A MyFibroTeam Member

Thanks @A MyFibroTeam Member, that helps a lot. Citizens Advice are the same here, that's if you ever manage to get an appointment to see them!
I'll have a look and perhaps Google it to find ours. Didn't even know they offered anything like that, so you've been a great help, appreciated. 😊

January 20, 2018

Related Questions

View All
A MyFibroTeam Member asked a question πŸ’­
Wales, UK

A MyFibroTeam Member asked a question πŸ’­
London, UK

A MyFibroTeam Member asked a question πŸ’­
Chippenham, UK