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Giving Up Work
A MyFibroTeam Member asked a question 💭

Has anyone in the UK given up work because of fibro. I live on my own and I'm finding work really hard at mo, but because of finances I'm worried about giving up work but feel I can't do it for much longer. If I did do it I don't even know how I would start the process. Please help

posted January 15, 2018
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A MyFibroTeam Member

I felt I needed to keep working full time and not give in to IBS and Fibro. I did this for a lot of years but when my son developed insomnia, and combined with my sleep issues, I got Hodgkin’s lymphoma. When recovering, several close relatives got very ill and died, I then really started to struggle. I think my long term employer (16 years) saw this and made me redundant. I was really upset at the time, and the money was an issue, but I can now say that it turned out to be the best thing that could have happened. I work part time now in a lovely bridal shop and although poorer I am much happier and more able to cope with Fibro. I am also 5 years clear of lymphoma 🤗. Still desperate to get rid of the Fibro though as I am scared that my compromised immune system from IBS and then Fibro might have been the reason I developed lymphoma?

posted January 15, 2018
A MyFibroTeam Member

I live in the states. Thank god I have a husband that works his butt off and tells me no work. I can't so many years working in pain just can't no more. We live on very tight budget. Don't no what I would do without him. Waiting on disability but we all no how that is. I've been out of work for 16 months now and my attorney tells me I have about another 16 months before I go into a hearing and that will determine weather I get some help or not. Hugs and Prayers

posted January 16, 2018
A MyFibroTeam Member

Yes I did. I'm on ESA and PIP. It's not much money, but enough to live on. I also receive Housing benefit. I would recommend getting someone with practice to help you fill out the PIP form as it looks simple but they are looking for very specific answers.

Hope this helps. Good luck! Xx

posted January 15, 2018
A MyFibroTeam Member

I'm in the UK.
I too are unable to work because of my Fibro. I get PIP and ESA.
From PIP i get roughly £450 a month
From ESA I get £73.10 weekly.

This helps me survive. I do have a partner, but we do own are own house. You do have to be careful with money.

The way I found out about this, was by going to a local Job seekers centre. They were brilliant, they explained everything to me and helped me fill in the forms when I gother them.

posted January 16, 2018
A MyFibroTeam Member

I have been unable to work for 3 years now due to severity of neck disc herniations and fibro

posted January 15, 2018

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