I understand that sudden trauma of any kind can be a trigger for fibro. My question is, do those symptoms worsen, "plateau" then you have flares for the rest of your life? That "plateau" becoming your new normal. I'm still new to this and trying to learn. I believe mine was triggered either by having a stroke or losing my father or the combination of both.
It is believed that fibro is caused from a trauma. Research by a doctor on a fb site (look up medical medium) has shown that the ebstein barr virus is what causes fibro. The virus is what causes mono(the kissing disease) after mono, the virus lies dormant in our system until a traumatic event occurs. Fibro is the next phase of ebstein barr. Look this up it is very interesting. Even if you were not diagnosed with mono, that does not mean that you did not have it. You could have thought it was just a bad virus. It causes swollen glands and severe exhaustion. I slept 22 hours a day for 2 and a half weeks. Doctors can do a bloodtest to see if eb is in your system. It will show active or not. They are working on a antiviral for us to take. Hopefully it will be out soon. As for fibro, you need to take one day at a time and sleep as much as possible. Take supplements that helps with inflamation. I also take magnesium and potasium because fibro depletes us of them. I also take a probiotic to keep yeast level down and leaky gut under control. I have had fibro for 30 years and you will have to find the right combo of meds that work for you. It takes trial and error to get something to help the fibro. Keep trying until you can at least function most days. I have had years where i was homebound (except for doctors appt). Alot of that time was because of depression and the pain. I have taken supplements for 5 years now and been able to function most days. I still end up in bed if i overdue it but at least i can get out most days. Look thru the q and a section in here and you will learn alot. I hope you can find a good doctor that will work with you to find what helps. If you have anymore questions, I will try to answer. Everyone on here is very helpful and we all understand what each of us is dealing with. Good luck. Hugs
I have had fibro a long time ive started on probiotic vitamins which has magnesium,calcium in it does take the edge off the pain.I only work part time but struggling most days with tiredness and fibro fog.x
@A MyFibroTeam Member, Hello n Welcomeโบ, haven't red your Story yet,but sounds like you've recently been diagnosed with this nasty icky crapppy stuff!!!! Once you have it, you learn to manage it !!!! Research all you can, hopefully you have a good Dr., if you don't ,find one, and one that believes Fibromialgia really exists!!!!!! Get good sleep,VERY IMPORTANT, Try to keep your stress level very low ๐ข๐ฆ๐ฎ that's easier said than done, lol. Keep a Journal, I write down everything about my day, what time I went to bed? got up ??? how many times I woke up during the night?? what I ate, how much pain meds I took??? About your meds, you have to try different meds, together,until you find the ones that HELP YOU !!! I myself, am trying to get off pain meds, with Cannibus, Essential Oils, n hydrotherapy!!!! Love the Water ๐๐ How I feel that day , How Rick my ole man n I were, sometimes we agrue, but mostly he knows about this crap, he knows when to leave me alone !!! When I'm having a flare up ๐จ๐จ๐จ He takes great care of me โคโคโค Actually we r a TEAM !!!! 29yrs come April 29th !! WOW, when I typed that #, 29 WOW Married 29yrs !!!! Marriage is hard, you definitely have to work at it, n ALWAYS COMMUNICATE ๐๐๐๐ Everyone of us is effected differently, n everyday is a different day !!!!! Now that I have rambled on, hopefully you'll get alot of great vibes, awesome friends that know what your going thru, on this site !!!!! Hugs flying ๐๐๐Peace n Love n Happiness too ๐น ๐ ๐บ ๐ฟ ๐ผ ๐ด ๐ป โ โค ๐ ๐ ๐ ๐ ๐ ๐ ๐ ๐ ๐ป๐ถ๐ธ๐ต
@Trauma???? YES VERY TRUE!!! My Granddaughter was in a car accident at the age of 14 n Today ,she is 17, 2 years ago she was diagnosed w Fibromalgia, She started hurting all the time after the car accident n her mom thought she was putting after a year of complaining n no dr could find anything! After 3 hospitals,5 drs, n 4 clinics n more than can remember tests ,they jus said,....SHE had Fibromalgia! In alot of pain all the time!!! . I HATE IT FOR HER TOO HER TOO YOUNG!!!! โก โก So Ty Jesus they finally found out what was wrong n diagnosed it,my baby is suffering so much! I hope this answer helped? As time is going along....it's like every flare up is different n more symptoms n ailments come along ....After 12 years of suffering myself, nothing surprises me!!! Different types of pain hits me,there's not a part of my body that's not effected! Sweet n soft hugs to u!!!!
FYI .. mine has been going on for at least 15 years and doctors still donโt have much of a clue .. only want to send me to pain clinic and they shoot me up w cortisone type shots that done last long and pain clinic isnโt cheap... doctors are scared of using opioids w me .. I truly need them w crushed foot pain and the many other issues I have .. neuropathy for one ... I have good days and bad .. sometimes it seems cyclical .. but I donโt ever seem to plateau .. itโs sharp up and delayed reaction w meds .. I suffer a lot.. I try to set alarms to take meds ahead of the next time to take it ... to stay ahead . Itโs a difficult roller coaster... I have worst time at night!! I have nights I donโt sleep a wink due to being uncomfortable w pain and I can go several days in a row w very little sleep .. other nights I go until almost morning and my body gives up and itโs almost like passing out .. then I sleep a few hours and sometimes woken up by pain .. and start over waiting for it to kick in or my body to give up .. I toss and turn and go to other end of the bed from my husband trying not to wake him.. if Iโve done more than I should during the day; I pay for it that night w more severe pain.. shooting up and down arms legs feet neck back etc !! I take an osteo bi flex generic .. and magnesium seems to help as well as vitamin E and D3... biotin is another I take .. and zinc .. b12 is another one supposed to help meds work Better I hear.. it allows he body to better absorb the meds you take.. generic Flexeril helps w joints and muscles etc ... generic is cyclobenzaprine.. I also have diabetes and neuropathy .. back issues and carpal tunnel in both hands .. these donโt help w fibro issues.. I started enthuse supplements when I saw a pill sold online for fibro and i took note of the supliments in it on the label and added those items to my regimine.. I have noticed a good difference in fibro issues .. talk to your doctor about any of these things that donโt do well w things you may be taking by prescription... doctors unfortunately donโt yet seem to have any clues on fibro and can be very callous.. I take Norco .. mix of hydrocodone and Tylenol.. mainly due to a crushed foot.. but it helps w other issues as well ... doctors are getting very adamant about these type drugs for fibro and refuse to prescribe them . Unless you have something as major as a crushed foot like me .. even then my docs are trying to get me off of them and send me to a pain clinic ... another cost to me and these injections are a pain in butt and donโt last long and donโt always work.. cost is astronomica!!!