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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Maidstone, UK

I'm getting ESA as I've been signed off from my job. This was over a year ago and I didn't want to be stuck in the house, sleeping or doing nothing. So I started making candles & wax melts which has developed into a little business. I find I can stop when I'm too tired or have done too much but I don't earn enough for me to live on. Could I claim disablity or still get my ESA?

January 1, 2018
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Answer Summary

Members shared their experiences balancing self-employment with disability benefits, with several explaining that most disability programs... Read more

Members shared their experiences balancing self-employment with disability benefits, with several explaining that most disability programs allow limited monthly earnings without affecting benefits, though exact amounts vary by program and location. Many members offered practical advice including calling the social security office directly to understand earning limits, cutting back work hours temporarily if income gets too high, and applying for PIP (Personal Independence Payment), which several noted is based solely on health status rather than income and can be received while working. A recurring theme was the emotional validation around needing flexible work arrangements due to chronic illness, with members expressing solidarity over unsupportive employers and encouragement to pursue self-employment options that allow for rest and pacing.

A MyFibroTeam Member

Unfortunately it also takes a few months but you can get PIP back dated. It's Personal Indepedant Payment. It's a mental and physical health benefit. The amount you get depends on your physical and mental health.
You can apply for the paper work from the directgov.co.uk.

Just to let you know you have to have a health assessment with this benefit. It doesn't take your earnings into consideration just your health.

Hope this as helpful

Pati xx

January 3, 2018
A MyFibroTeam Member

Do you receive PIP? you can receive PIP and still work. Xx

January 2, 2018
A MyFibroTeam Member

For the PIP they basically ask you the questions that you have already asweared in your assessment sheet. Only they have the answers sitting in front of them and you don't.
I think it's to make sure your not lying.
I won't lie to you it's a bit stressful. I would recommend getting someone to help you fill out the forms with you that is expearienced in benefit forms. They are looking for very specific answers, although allot of the questions are strait forward some of them are very intrusive and tricky.

Good luck xx

January 4, 2018
A MyFibroTeam Member

@A MyFibroTeam Member what was it like?

January 3, 2018
A MyFibroTeam Member

It's horrible and a dare say that PIP is worse.
Good luck with your assessment 😊

January 3, 2018

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