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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I wonder if Vitamin D deficiency is one of the reasons for fibromyalgia causing widespread pain, especially to patients in the Midwest where we don't have a lot of sunshine in the winter months. Exposure to sun is one of the recommendations for pain relief.

I have been researching this vitamin for a friend of mine who has terrible arthritis pain. Arthritis pain is widespread like Fibromyalgia, however, luckily Fibromyalgia does not cause deforming in hands and feet which arthritis causes… read more

December 31, 2017
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Answer Summary

Members shared widespread experiences with vitamin D deficiency in fibromyalgia, with many reporting dramatically low levels despite living in... Read more

Members shared widespread experiences with vitamin D deficiency in fibromyalgia, with many reporting dramatically low levels despite living in sunny climates and finding that supplementation significantly improved their energy, pain, and overall symptoms. Several members described their doctors prescribing doses ranging from 2,000 to 50,000 IU weekly, with practical advice including taking D3 with magnesium at night for better absorption, using liquid D-drops instead of tablets for oil-soluble vitamins, and getting regular blood work to monitor levels. A recurring theme was frustration with insurance companies denying coverage for vitamin D testing despite its clear connection to fibromyalgia symptoms, coupled with hope that proper supplementation alongside magnesium, B12, and other vitamins could restore lost energy and reduce pain.

A MyFibroTeam Member

Before I was taking Vit D I was waking up feeling unrefreshed , and exhausted every moment of the day, all the main fatigue symptoms of Fibro. Once I got my Vit D to a good level (I was VERY deficient) ALL of my fatigue symptoms went away. It felt like a miracle. I actually go through my days now without being in a fatigued state. And with my Tizanidine to help me sleep I take NO naps during the day anymore!! It’s crazy!! I still experience the other symptoms of fibromyalgia like pain but I feel so much better now my Vit D is at a stable level. I suggest anyone with fibro get all there vitamin levels checked out. It’s been amazing to actually feel the energy I thought I lost forever.

December 31, 2017
A MyFibroTeam Member

My dr rx me 4,000 iu of vit d a day. I live in Southern California, n still vit d deficient.

December 31, 2017
A MyFibroTeam Member

Vitamin D is very beneficial for depression, sleep disorders, pain, etc.

December 31, 2017
A MyFibroTeam Member

I do take 4000 mg per day of D 3.and my pain level is low plus everything else I take

January 6, 2018
A MyFibroTeam Member

I have trouble with Vit D deficancy. I took 50,000 units of D3 once a week for a month. Levels came up and went on 1000. I was terribly tired. I would come home from work and fall asleep. My legs hurt. I had no problems after that. This July the first set of tests the rheumatologist ran showed i was deficant again. I did another go of 50,000units. It is back up to 34---bottom of the range is 30. Rheumatologist said that was good. I've read where it should be higher. She has me on 2000 once a day. Problem with Vit D is it's fat soluble. If you are over weight your extra body weight tends to absorb it. It doesn't do what it is suppos to do. That is what my doctor said. I know they recommend you take it with the fatest meal of the day.

January 4, 2018

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