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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Raleigh, NC

Hi i was given a script for Vitamin D by my doctor for fibro he tested me and stated it is extremely low. It is weird because my step mom in law was diagnosed years ago with fibro and she constantly has to take vit d because it remains low. Does anyone else have that

September 3, 2015
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Answer Summary

Members connected over the shared experience of vitamin D deficiency alongside fibromyalgia, with many reporting extremely low levels despite... Read more

Members connected over the shared experience of vitamin D deficiency alongside fibromyalgia, with many reporting extremely low levels despite outdoor activity and requiring high-dose prescriptions ranging from 1,000 to 50,000 units weekly. Several members shared practical strategies including taking both D2 and D3 supplements, pairing vitamin D with calcium for better absorption, and recognizing when levels drop based on increased pain or fatigue. A recurring theme was the mystery of why fibromyalgia patients struggle to maintain normal vitamin D levels, with theories ranging from poor absorption due to digestive issues like IBS to the body using it up faster, though many found modest pain relief when their levels normalized.

A MyFibroTeam Member

I go outside quite often i am an outside type person. I do get the ibs because i have had that since i was a teenager so i may not absorb it well because i already have some autoimmune conditions, it is just strange to me that since the fibro diagnosis that more and more is wrong with me

September 4, 2015
A MyFibroTeam Member

Truth be known most of us probably if you don't get out in the sunshine other than back and forth to work and church. Vitamin D difficiency will also make your legs ache.

September 3, 2015
A MyFibroTeam Member

My first test I was told was 17. Second only bumped me up to 23. Norm is 30-100. I'm now taking 2000 daily and was told to add 500 calcium.

September 3, 2015
A MyFibroTeam Member

When I asked my Dr. about Fibro patients in particular being low in vitamin D he chuckled and said yes because they don't go outside much!

September 3, 2015
A MyFibroTeam Member

I too have low Vitamin D and must take a prescription. My doctor told me most fibromyalgia patients run low on Vitamin D.

September 3, 2015

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