Well they don't understand and constantly suggest alternative treatments like acupuncture bla bla. I don't take Dr s meds like ametryptoline or the lyrica etc
People seem to get side effects and fat too !!
I ve decided to join a dance class ..even I it kills me. I ll pop pain killers and try to enjoy the music I ve always loved dancing and have medal s for ballroom dancing from in my teens !
No easy answers but an exercise I enjoy is my way of thinking x

Well my hubby tried but constantly keeps suggesting cures etc !!
My daughter doesn't always get it but really tried.
In the whole they sympathize but forget of course because normally pain for them is flu or sciatic etc.
We learn to suffer in silence. Xx

To be honest...My family sucked before I had fibro and it was even worse after my symptoms started. They are not really supportive. I think it's because I have always been supportive of helping them with their kids, taking care of drug addict brother, giving money, and just doing errands and such... I have always been the natural caretaker and so when I needed help? No one was there to be found. They tried to listen at first but not really put in effort or time for me. I was really alone. So, I saw them last night for holidays but in my heart I know that they have let me down and my fibro diagnosis helped me see that. I was trying to make my family a loving and caring family when they just aren't. I see all the attention if one goes to the hospital for a pain that everyone can visually see, but no apathy on all my hidden pains. No one has researched my disease. They think it's just only pain like in the Lyrica commercial and that's it. I don't think it's just a faulty response in your brain, i think something is causing it and it can be fixed.Anyhow, Fibro is way more than just pain.I am lucky I have my guy who listens to me and helps me. So, I do not rely on my family for emotional and mental support, I will never ever get that with them and I just have to accept that.

My partner is amazing, he comes to all my app with me and supports me massively. We made a flare up plan together and stuck it to the fridge, so if I have a flare up. He know exactly what he can do to help me. Rather than asking. He also helps me around the house. I still gets me to do things, but he helps. (e.g. he will brinot the washing basket downstairs and put it next to the washing machine, so I can deal with the washing, then when it's dryed he will take it back up, sor I can put it away)

The rest of my family they areally supportive but I don't think that they fully understand.

Since my Fibro decided to come out of remission in winter 2015, my immediate family (husband, grown children) see the difference in me before & now...and are now much better at understanding my pain and me trying to smile through it. My husband just really "got it" this year. He finally realized this is not going away. Thank you, Lord! My new daughter in law gave me a "NO" button for Christmas. She says I need to say no more to people and things that drain me. However, my siblings, seem to discount my pain. I don't think they have a clue. More In my bio.

Meds aren't really discussed. If they have asked, I have told them. If they haven't, I haven't.

Wishing your family "gets a clue" and you have a stress free 2018! Hugs.