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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Wivenhoe, UK

I find that recently my sleep has gotten so bad that I sometimes only have around 4/5 hours with disturbances during that time would be really interested to know if others have experienced this have had fibro for nearly 10 years

December 18, 2017
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Answer Summary

Members connected over the challenge of waking extremely early with fibromyalgia, with many reporting consistent wake times between 3:30 and... Read more

Members connected over the challenge of waking extremely early with fibromyalgia, with many reporting consistent wake times between 3:30 and 6:30 AM after only a few hours of fragmented sleep, often interrupted every 30 minutes. Several members shared that medications like hydroxyzine, amitriptyline, and low-dose clonazepam have helped them fall asleep or manage restless legs, though pain remains the primary culprit that disrupts rest and prevents the deep REM sleep needed for healing. A recurring theme was the frustration of never feeling truly rested, paired with gratitude for the community's understanding and practical coping strategies like gentle morning stretches and the comfort of pets.

A MyFibroTeam Member

Sleep is no escape for FM. The pain enters my dreams and hammers me even there. I do stretches for thirty minutes each morning, gently to soothing music, this seems to help. Sometimes I can return to bed and sleep another hour or two. Hugs.

December 21, 2017
A MyFibroTeam Member

Animals are wonderful

December 19, 2017
A MyFibroTeam Member

Yup i had fibro for 15 years and i have sleep disturbance. I wake up throughout the night many times, when i do look at the clock when im wide awake, every night it says 5:04

December 19, 2017
A MyFibroTeam Member

I have had fibro for 30 years and always had sleep issues. I went thru phases were i would lie in bed for hours not being able to sleep. Then if i went to sleep, i would wake up every 30 minutes. That is why our bodies can not heal because we never get into rem sleep. That is when our bodies are supposed to be in a healing process. Now I have been able to sleep for 2 or 3 hours in a row, at least once during the night. I still wake up sometimes, every 30 minutes or so but at least i get a few hours in a row. I have been waking up between 530 and 630 for several months and have to get up because of the pain. It is way to early for me. I take hydroxyzine, which is an antihistamine, at night and it does help me go to sleep. Anyway, you are not alone. Have a great day. Hugs

December 19, 2017
A MyFibroTeam Member

Defo not hun 😗

December 21, 2017

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