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A MyFibroTeam Member asked a question 💭
Lincoln, UK

I get that people have good days and bad days with their various symptoms but having only just being diagnosed I was wondering do they get worse overtime?

November 23, 2017
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Answer Summary

Members shared mixed experiences about whether fibromyalgia symptoms worsen over time, with some reporting progressive worsening including new... Read more

Members shared mixed experiences about whether fibromyalgia symptoms worsen over time, with some reporting progressive worsening including new symptoms like balance issues, burning feet, and increased pain sensitivity, while others emphasized that flares and severity depend more on stress, activity levels, weather changes, and other health factors rather than a predictable decline. Several members offered hope through practical strategies that have helped them manage symptoms, including acupuncture, the keto diet, Epsom salt baths, green smoothies for IBS relief, regular stretching, adequate sleep, stress reduction, and heat therapy like hot springs or ceremonies. A recurring theme was that fibromyalgia management is deeply individual and requires persistent trial and error to find what works, with many members finding greater relief through natural remedies and lifestyle changes than through medication alone.

A MyFibroTeam Member

I have read many scientific articles and books that fibromyalgia is progressive. And the reason for that has many facets to it. Too many to text but has to do with age, weight gain, inactivity, etc. Many other things.
That’s why after my first year of diagnoses I went off all drugs and took control to find all natural remidies to improve the quality of my life. I just turned 59 and I wanted my life back. It’s been a hard road but I’ve been very successful.
Every day is a fight for my life but it’s worth every minute!
xxxx

November 24, 2017
A MyFibroTeam Member

Hi @A MyFibroTeam Member, My name is Andrea. I agree with Ms @A MyFibroTeam Member, that you have bad days and better days. Sometimes though new or latent symptoms become more prominent while others become less noticeable. Like in cooler wet weather my bones hurt more (*like 3 days before cold wet weather is coming). I ache and do little then. But then that low pressure leaves and I feel the normal tired and dull aches. They may become more predictable over time. Best wishes to you... BTW I noticed on another question you mentioned IBS. I had that, too, but I took green smoothies daily for about 6 months and it went away... Its still gone and I have not done green smoothies in several months, almost a year. I hope this helps. The little girl in your picture is adorable. Best to you, Andrea

November 23, 2017
A MyFibroTeam Member

Thank You so much for all of your great information! I also take Vitamin D which has really helped with the bone pain. I also have Epson Salt that I'm going to start using and was seriously thinking about acupuncture and Keto! I'm not much for medication because of side effects and I'm always looking for natural or holistic remedies so I guess I was on the right track since I was thinking about all of the things you mentioned! You definitely should consider starting that blog. You've been very helpful to me! Thanks so much and hope you continue feeling well!

November 28, 2017
A MyFibroTeam Member

@A MyFibroTeam Member, after a lot of trial and error what works for me is a great acupuncturist, massage, Epson salt baths, heating pads, 9 to 10 hours of sleep a night, keeping myself in as low stress as possible, staying away from all of my triggers, exercise, mineral hot springs and to complete the circle, the keto diet I’m not a big believer in supplements but I do take vitamin D because I live in a four seasons state.
The only medication that I am on is synthroid and ambien. I’ve been hypothyroid for about eight years and I have suffered from insomnia since college. I actually have genetic insomnia so it is taken many years to figure out how to sleep at night.
My life was hell in the first year of diagnosis. I was in bed five days a week and I tried all the medications most people here have tried, but for me it was not something that I wanted to continue. Drugs will just make you worse in the long run so I needed to figure out another way.
It’s a full-time job and like I said it’s a lot of trial and error but I can honestly say that if I stick to my routine I am completely pain free.
If I had to pick two things that help the most I would say it was acupuncture and my diet.
My pain management doctor and my general practitioner want me to start a blog because of the great success that I have had in treating myself. I’m really thinking about it. So many people on this site have helped me and I would love to help other people in my same situation if I could.
I hope you are doing well tonight!
xxxx

November 27, 2017
A MyFibroTeam Member

Mine has gotten worse I was diagonoised in 2013

November 26, 2017

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