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A MyFibroTeam Member asked a question 💭
Ipswich, UK

Has anyone suffered from eye symptoms? Did you get diagnosed with anything or get treatment? Has anyone been to the opticians and did they find anything abnormal? Suffering terribly, i can't spend my life in a dark room. Please help x

November 7, 2017
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Answer Summary

Members connected over the frustrating experience of eye problems with fibromyalgia, sharing symptoms including light sensitivity, dry and... Read more

Members connected over the frustrating experience of eye problems with fibromyalgia, sharing symptoms including light sensitivity, dry and itchy eyes, blurred vision, floaters, double vision, muscle strain, and sensory overload that often forces them to dim lights or wear sunglasses indoors. Several members offered practical strategies such as using lubricating eye drops or gels like Viscotears, cleaning eyelids with warm water or E45 unscented soap, trying prescription eye drops like Olopatadine for itching, wearing tinted or yellow-lensed glasses, and using OcuSoft Eye Lid Scrub pads for managing blepharitis symptoms. A recurring theme was the importance of getting eyes checked by an optometrist to rule out other conditions, being cautious about unnecessary glasses purchases, and recognizing that fibromyalgia can affect every part of the body including eye muscles and tear production.

A MyFibroTeam Member

I have days when my vision is more blurry than usual and I can’t see well. Also I do have light sensitivity. As far as when I went to optometry, she told me I had vision discomfort and to take breaks from my computer. Not sure if that helps. Do you suffer from migraines as well? I would go to get it checked out just to be safe.

November 7, 2017
A MyFibroTeam Member

Sarah, no worries about spelling it, I just wanted to spell it correctly for everyone so they know how to look up. I have this disease and it is at times the worst feeling. When its bad it feels like you've been through a dust storm in Arizona and forgot to close your eyes. They are on fire, swollen, and feels like dust/grit is in the eye and you can have blurry vision from it.

So the way I keep my eyes cleared up is to not wear any makeup and clean my eyes in the morning and at night with warm to hot water. I buy these eye scrubbing pads (OcuSoft Eye Lid Scrub) at CVS/Target/WalMart. It has a soap on the pads that is safe for the eye. I scrub my eye with them then use a clean wash cloth with the hot water to wipe away the soap. Then afterwards I use eye drops. I use eye drops 4 to 6 times a day. I do this every day. It helps keep the disease at a minimum. I was taught this by my eye doctor. I even have these at work just in case I need to wash my eyes.

I hope this helps everyone.

November 20, 2017
A MyFibroTeam Member

@A MyFibroTeam Member Hi, Sabrina. It's Viv. With fibromyalgia, you get a lot of sensitivity with your skin, eyes, hearing, taste, etc. I find that it's like an allergy due to some of the meds we take, my eyes would be watery, itchy, burning, crying. My doctor gave me prescription for Olopatadine 0.2% . Just a drop will take the itchiness or burning away. Take care. @MyFibroTeam users... Hope it will help you too. Take care.

November 7, 2017
A MyFibroTeam Member

I get dry eyes, itchy eyes, pain in eyes. I'm very sensitive to light. My left eye gets blurry randomly and I get black floaters almost all the time. Sometimes my vision looks a little foggy. I went to optomistrist and she gave me glasses for the blurry left eye. The problem is that it's not always blurry so the glasses were kind of a waste. It doesn't hurt to have them checked, just be cautious. She later told me not to use them unless I ABSOLUTELY had to because your eyes adapt to them and eventually get worse. I wouldn't have paid all that money if I knew that before hand! Lol

November 7, 2017
A MyFibroTeam Member

It spelled: blepharitis. I know i have it.

An inflammation of the eyelid that affects the eyelashes or tear production.

November 17, 2017

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