Thank you all.

@A MyFibroTeam Member My wife hasn't been coming to appointments with me due to work commitments, but she will come on Wednesday to my next appointment and is pushing for me to take some sick leave rather than travel to a conference on Thursday and Friday. It's good to know she still cares and intends to fight for me when I lack the strength to fight myself.

Also, it might give her perspective on what I'm going through, as words aren't enough sometimes. Say that I feel like I'm walking on broken glass and the muscles in my back are so tight they'll snap (typical symptoms for me when the weather turns cold) is hard to understand unless you've been through it.

We've called a counselor and should be able to start in the coming weeks.

Thanks to you all. Your kind words, excellent advice have given me the strength to carry on at a tough point. Gentle hugs to you all. 🤗

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A MyFibro...

Hugs, I am no expert darlin and sorry to hear of the pain both physical and emotional. Communication is key. Perhaps seeking council together., Even if she is not open to council, for your own peace find a confidant, a therapist or even pastor or priest. some one whom you can share this with. Express yourself in a loving manner. You can only control the way you express and react. Yes, yer body can be yer daily combatant. but you are strong. Remember, even in our dark we have the capacity to be the sunshine. Prayers of love and hope to both you and your wife.

I do got to counseling but he refuses. So I don’t know what to do at this point

Great post. Very well said. Like anything in marriage you must talk. I miss being close to my husband because he won’t talk about his problems

She's scared. Most people who encounter something they don't understand are. I know my fibro scares me and I know what's going on in my body. She loves you and has no idea what's going on in yours. I get the feeling from your post that you don't want to talk about it because that means facing it. She sees it as you pushing her away and is trying to control what she can.
I think this happens to most of us with the person we are closest to. My husband's way is to ignore it. If I try to talk to him about how a new symptom is he says "well just wait til you see the doctor."
Including her as much as possible so she feels less afraid of what might happen would probably help. Control is a big issue when we know we have lost it ourselves.