There is a book for family members of fibromyalgia warriors. That will open their eyes. I had a huge issue with my family until I gave them the book Fibromyalgia for Dummies one year for Christmas

I don't get the pity, I get the judgmental tone. I am sick and tired of it though, I don't want to be asked all the time how I'm doing. My husband and my girls at home are enough support and I feel they are genuine. And of course now I have this place. I don't like to share with others because I've heard to much that I can just get past this.

OMG! That same sentence comes out of my daughter's mouth! AND i have the same response! 😂😂😂 I'm not sure you don't think that Im crazy, but it strikes me as Hilarious....

I finally got to the point that if it was someone being condensing or just nosy I just flat out say to whoever it is I no longer discuss my health issues with anyone not in my support system or on my medical team.

Yes, regardless of which family member call the conversation begins with are you sleeping or did I awaken you? Every phone call with my mom ends with now, just go back to bed or sleep because you need all the rest that you can get. I’ve even heard my niece that live next door say that I park my car behind my house because I don’t want them to know that I’m home because all I do is stay in bed and sleep all day. She of all people should understand because her mom, my baby sister, has fibromyalgia, Lupus, chronic fatigue and is a breast cancer survivor. Her mother and I were at our family home discussing our illness and how it has affected our lives. She said that she doesn’t allow her body to dictate her life because if she did she would always be in bed and I replied that’s why you are always in the hospital. I don’t have a choice my illness has taken over my life, so has hers, she just won’t admit it. My dad has even said something should be done about me and that really shocked me because I thought he understood me more than anyone, other than my kids. I guess if I was a horse I’d be put out to pasture by now! I know that whenever we have family functions coming up, he will say you have three weeks or whatever the timeframe is to rest up or all you have to do is go to the gathering for a little while then go back home. As if I need to make an appearance so everyone will know that I am still alive, and functioning. If he had an inkling of how exhausting it is to shower and get ready he wouldn’t ask. It really make me sad to think that my family feels this way.