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Coeliac

A MyFibroTeam Member asked a question 💭
Stockport, UK

I'm having a blood test tomorrow to see if I have coeliac.

Does anyone else have this?

Any advice for me should the blood test come back positive

Thanks

October 15, 2017
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Answer Summary

Members rallied around someone awaiting celiac blood test results, sharing how strict gluten-free diets transformed their gut health and... Read more

Members rallied around someone awaiting celiac blood test results, sharing how strict gluten-free diets transformed their gut health and sometimes even reduced fibromyalgia symptoms, though many noted the adjustment period can be challenging and expensive. Several members offered practical strategies including reading labels carefully to avoid hidden gluten, watching for cross-contamination in shared kitchens, exploring dairy alternatives like almond or coconut milk to reduce inflammation, and joining the Celiac Society for ongoing support and resources. A recurring theme was the surprising overlap between fibromyalgia, IBS, and undiagnosed celiac disease, with many members only finding relief after years of misdiagnosis once they eliminated gluten and sometimes dairy from their diets.

A MyFibroTeam Member

Eating Gluten Free
A strict gluten-free diet is the only medical treatment for coeliac disease. Removing gluten from the diet enables your gut to heal and your symptoms to improve.
What is gluten?
Gluten is a protein found in:
Wheat (including spelt)
Rye
Barley
Oats
What can I eat?
There are four groups of food that are suitable for those on a gluten free diet:
Naturally gluten free foods
For example: Fresh fruit and vegetables, fresh meats, eggs, nuts and legumes, milk, fats and oils and gluten free grains e.g. rice and corn.
Products labelled ‘gluten free’
You can be confident that products labelled ‘gluten free’ contain no detectable gluten.

October 15, 2017
A MyFibroTeam Member

FYI

What is coeliac disease?
In people with coeliac disease (pronounced ‘seel-ee-ak’ and spelt celiac in some countries) the immune system reacts abnormally to gluten (a protein found in wheat, rye, barley and oats), causing small bowel damage. The tiny, finger-like projections which line the bowel (villi) become inflamed and flattened. This is referred to as villous atrophy. Villous atrophy reduces the surface area of the bowel available for nutrient absorption, which can lead to various gastrointestinal and malabsorptive symptoms. Symptoms can also be caused by inflammation in other parts of the body.

October 15, 2017
A MyFibroTeam Member

Stay away from gluten and dairy girl! I eat paleo breads and drink almond milk. I also cut out sugar too! I also started taking zinc to calm and heal the gut! It's celiac disease is what I thinking you mean. Actually if you have it and get rid of gluten, your fibro my feel better! I know a girl who had fibro and cut out gluten and suffered no more. Didn't work for me but helped!

October 15, 2017
A MyFibroTeam Member

I was also told by my gastroenterologist if you have IBS or sny other bowel related condition, don't eat grain bread. The grains as they are passing through will scratch the bowel etc and cause unnecessary damage and irritation. He told my Mum the same as she has diverticulitis. He told her to eat wholemeal as he said white bread will clog you up as it takes a lot longer to break down.

October 16, 2017
A MyFibroTeam Member

Take out Dairy foods! Almond milk has helped. For the want of milk lol
I've found out with Fibromyalgia And Dairy I'm so sick right away. Mostly milk.
I hope this helps.

October 15, 2017

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