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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Glasgow, UK

I am 21 and I’m really struggling with my mobility now, my family doesn’t understand my pains and when I mention possibly needing to use a crutch daily or something else to help me they look down at me or make comments like why would you do that they are only for people who need them. I’m starting to feel like maybe they are right and I’m just being stupid because I’m not actually registered disabled as I can’t get PIP (keep being refused) so tired of not wanting to go places because standing is… read more

September 30, 2017
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Answer Summary

Members rallied around a 21-year-old struggling with mobility and family judgment about using walking aids, with the overwhelming consensus... Read more

Members rallied around a 21-year-old struggling with mobility and family judgment about using walking aids, with the overwhelming consensus being that if a mobility aid helps, you deserve to use it regardless of whether you are officially registered as disabled or what others think. Several members shared their own experiences using wheelchairs, scooters, rollators, canes, and shower stools on bad days, emphasizing that these tools provide independence, safety, and the ability to participate in life rather than staying home in pain. A recurring theme was the fear of judgment from others, especially when symptoms are invisible or fluctuate, but members encouraged self-advocacy, noting that mobility aids can also signal to strangers that you may need extra space or patience.

A MyFibroTeam Member

There are some pretty funky/pretty fairly inexpensive walking sticks out there and, if nothing else, they signal to others when you are out that you might not be able to navigate the pavement as quickly as they would otherwise expect. I've had a lot of people walk into me because under normal circumstances I would have been out of the way before they reached me but haven't had the balance to do so. It's nobody else's business really whether you find a walking aid helpful or not. If it's helpful, you should have one!

October 1, 2017
A MyFibroTeam Member

I use my sons wheelchair to walk, I couldn't manage it otherwise

October 3, 2017
A MyFibroTeam Member

I keep a cane in the trunk of my car for the days I'm out and my knee randomly decides to hurt... (I've had the xrays, and there's nothing visibly wrong with either of them) They were my first fibro pain...

October 2, 2017
A MyFibroTeam Member

What's a rollator

October 2, 2017
A MyFibroTeam Member

I have the same problems with standing, it is so discouraging. I look like l'm drunk sometimes. I have to really concentrate when I walk, so that I don't draw attention to myself. My legs are really weak so I don't go places where I have to walk to far. I never connected this to Fibro, is it related??

October 1, 2017 (edited)

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