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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Glasgow, UK

I have a number of health conditions one being my fibromyalgia I'm only 21 but I do have it pretty severe! I have been turned down twice because apparently I only require 28 minutes help per day and to qualify you should require 30 minutes help. I know for a fact I need much more than 28 minutes help per day and I'm on lot of medications which I need my partner to help me take and to remind me to take. I was told they don't see fibromyalgia as a disability but I could do with the extra help… read more

September 19, 2017
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A MyFibroTeam Member

Think it's standard atos treatment... You have to appeal .. take it too citerzens advice and also welfare benefits advisor's.

Fibro is gaining greater recognition. Please appeal and fight it further.

September 19, 2017
A MyFibroTeam Member

I receive pip babe but I have a lot of other problems too. I'm in an electric wheelchair and my husband had to give up his job to become my full time carer and I get carers twice a day to wash and change and all my personal care.
Don't give up babe.keep fighting. Do you need any aids to walk.e.g crutches.i can't believe you've been turned down because you're 2minutes short.
I was turned down twice before I was diagnosed with fibromyalgia but I kept on fighting. I had to go to tribunal in Port Talbot. which is quite a spin from my house and they still turned me down. A couple of months later out of the blue I had a letter to say I had it.
Just keep fighting. Xx

September 21, 2017
A MyFibroTeam Member

For goodness sake 2 mins of a difference I'm so sorry for u,u need to appeal. I don't get it either they just say I'm not I'll enough but I am on esa so that helps along with my husband he is poorly so I get monies for him.but I do feel for u it's so hard.

September 19, 2017
A MyFibroTeam Member

I've applied recently and scored 0 on everything but the letter they sent me said that I showed know signs of disability or requiring any aids to mobilise .. I walked in with my crutches and asked for a different chair because I couldn't sit on the one they gave me as too low .. the criterias must be so strict .. I'm appealing as the reasons given were very inaccurate

September 19, 2017
A MyFibroTeam Member

Remember to include the help you need communicating if you get fibro fog /have confusion from meds. This was more important than the movement issues on my pip.

September 19, 2017

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