Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Toronto, ON

Alright peeps, wondering if there are others who have been dianosed first with CPS then with Fibro (my medical report says 18 point fibro positive).

.
.
.
.
.

I'm trying to figure things out since the rhumatoligist who dianosed me won't treat me since to him my case it to far outside his ability to treat and my gp is going back though everything to get me the right treatment.

But so far nothing has helped the pain only made it worse and I'm feeling rather down about it all.

September 3, 2017
 · 
Reactions

Answer Summary

Members shared their experiences navigating diagnoses of Chronic Pain Syndrome and fibromyalgia, with many describing the challenge of finding... Read more

Members shared their experiences navigating diagnoses of Chronic Pain Syndrome and fibromyalgia, with many describing the challenge of finding doctors willing to treat complex cases and medications that actually provide meaningful relief. Several members discussed their current treatment approaches, including combinations of Lyrica, Celebrex, Cymbalta, and seeing pain management specialists, though many emphasized that medications often only reduce pain to a tolerable level rather than eliminating it completely. A recurring theme was the frustration of long wait times for specialist appointments, the trial-and-error process of finding what works, and the emotional toll of living with intense daily pain while searching for effective care.

A MyFibroTeam Member

@A MyFibroTeam Member on the waiting list average wait time is 6 months to a year and since I've got other medical from birth most will not touch me so waiting on the speciality clinic at a local hospital that might look at me.

October 6, 2017
A MyFibroTeam Member

What is CRPS? Chronic ? Pain syndrome ? Thanks. I just haven't seen this on here.

October 4, 2017
A MyFibroTeam Member

I was diagnosed with CRPS with Fibromyalgia and I have been to do many different doctors without any relief but my current GP has put me on some new meds that are helping so far but I just have to make sure not to take them when I have to go to work because they make me so sleepy I did physical therapy but it only made my pain worse so he up my dosage on my Lyrica and I take Mirapex for RLS Elavil to help me sleep and Norco for the pain it has been working so far but I can tell when I miss a dose because my body hurts like everything and my legs burn like I was set on fire so I make sure not to miss taking it

September 20, 2017
A MyFibroTeam Member

Go see a Pain Management Doctor.

September 20, 2017
A MyFibroTeam Member

Ok, I have been diagnosed with both. My R.A. Doctor only treats my R A. My primary Care Dr. Gives me adderal which I take a half a pill each morning and it has helped some with energy. I do t have to go to sleep u til about 7:00pm instead of an hour or three after I have woken up in the morning. So that is good. I have to see a Pain specialist to help with my extreme, Intense, unbelievable pain. God Bless you and I'm here if you ever need to talk!

September 20, 2017

Related Questions

View All
A MyFibroTeam Member asked a question 💭
Phoenix, AZ

A MyFibroTeam Member asked a question 💭
Boston, MA

A MyFibroTeam Member asked a question 💭
Boston, MA