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Not just the standard meds like lyrica or treatments like physical therapy

August 21, 2017
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Answer Summary

Members shared their frustration about the lack of new treatment options for fibromyalgia beyond standard medications, with many describing... Read more

Members shared their frustration about the lack of new treatment options for fibromyalgia beyond standard medications, with many describing conservative doctors who offer limited support and infrequent appointments. Several members discussed medication access challenges, particularly the high cost of Lyrica (nearly $300 monthly) when not covered by Medicare or Medicaid, leading many to rely on gabapentin, tramadol, or low-dose naltrexone instead, along with advice to pursue prior authorizations and appeals. A recurring theme was the profound impact of the condition on daily life, from carefully timing medications around activities to missing precious moments like playing with grandchildren, all while navigating expensive specialist visits that often yield little progress.

A MyFibroTeam Member

@DonnaZegallia Wow! Stop pain pills. I don't think I could do it either! Yes doctors keep saying do more exercise it is kinda OK to walk or do some stretches anything more than and you're in bed for a week

August 21, 2017
A MyFibroTeam Member

Agreed! The other thing that bothers me; I was writing in my journal last night, I'm the baby of the bunch and I feel like the oldest. We have a function, I have to be sure to take my own car so nobody needs to leave to take me home, I need to bring my drinks or I'm incharge of virgin drinks! I look at the time I took my meds to determine how much shopping is in me before I need to sleep or sit down. Its funny, if me and my daughter go into a store with a dressing and no seat I go outside to sit and she takes shots of the clothes she is trying on!!! Gotta love it. I guys you have to adapt. The most painful thing is not rolling around on the floor with my grand baby. She says grandma let's go check your mailbox. I'm not going in the street. By the time I made it to the door of the car(25 ft) she was on her way back with the mail (another car length and1/2. "Slow down G baby, grandma can't move that fast! ".

August 21, 2017
A MyFibroTeam Member

@DonnaZegalua I kinda stopped going to neurology, ENT and Rheumotology for a while unless my pcp says anything has changed in my levels or rheumatologist calls with a "I have something I need to talk to you about" routine visits were becoming expensive and I was going to pain management for a year. No! By now I could have been the 6 million dollar woman all this money I'm giving these people.

January 24, 2018
A MyFibroTeam Member

Lyrica us highly mentioned but not covered my medicare or Medicaid I had to pay nearly $300 for a month now I can't afford it, nothing else works and things that will medical won't pay its ridiculous.

August 27, 2017
A MyFibroTeam Member

I am sorry I am talking about the treatment that Melissa.

August 24, 2017

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