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A MyFibroTeam Member asked a question πŸ’­
wales carmarthen

hey lovely people I'm just wondering if any one of you have experienced having trouble with your limbs .I have been losing use of my legs and it's not a joke. my body just gives way and I'm then falling down and smashing the things around me. I feel like I'm losing the plot and I am so scared that I'm gonna lose my licence because of this.please help any thing u can advise??

August 21, 2017
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Answer Summary

Members opened up about experiencing sudden leg weakness and balance problems that cause unexpected falls, with many sharing they now rely on... Read more

Members opened up about experiencing sudden leg weakness and balance problems that cause unexpected falls, with many sharing they now rely on mobility aids like canes, walkers, or wheelchairs and avoid driving or going out alone due to safety concerns. Several members described practical adaptations including shower chairs, quad canes, orthotics, tai chi for balance training, and having someone home during showers, while some found partial relief through cortisone shots or discovering underlying conditions like arthritis, nerve damage, or vitamin D deficiency. A recurring theme was the fear and isolation that comes with losing independence and mobility, balanced by gratitude for supportive family members and the validation of knowing others in the community share this frightening experience.

A MyFibroTeam Member

I had the same problem roughly 2yrs ago I noticed my balance was way off even walking to the kitchen I found myself reaching out to hold on to anything I could. I got up of the chair this one night to answer the door to my daughter after a nite out she forgot her key about 5-6 steps and totally lost my balance and hit the floor I couldn't get bk up as much as I tried anyway a long story cut short I suffered the pain in my foot for 4wks until I could take no more I went to A&E I had broken my foot in 3 places and was in a cast one day after the cast on I was helped of the chair to go to the loo it was thankfully down stairs and I fell again breaking the plaster again bk to hospital where they put me in one of those moon boots. I was in it for 12wks. Since then all I do is fall over nothing my legs simply get a tingling feeling and I'm down. I havnt drove in 14mths now my leg froze while driving I couldn't move it at all thankfully I wasnt driving dwn a hill I had to pull over using the hand break and get my dad to come get me. Im afraid of the same thing happening. I have OA in my knees and its a pain getting up and dwn stairs. I can't walk long distances even sleep is ridiculous the fibro pain with this has literally left me where I really only go to hosp & doc appts. I never go out on my own. I do my shopping online or my daughters get what I need I dunno wat id do without them or my family. Xx

August 22, 2017
A MyFibroTeam Member

I feel the same sometimes, not to the extent of falling yet but dang close.

August 21, 2017
A MyFibroTeam Member

At first, I was told I have an imbalance with one leg shorter than the other. I would be walking & suddenly one leg would give & I'd be down. Was sent to a neurologist who did some test & determined that I have nerve damage in the leg that gives me the trouble. After that the pain in that same leg, started on my hips. Rheumatologist than concluded that I have bursitis of the hip. Had cortisone shot which lessen the pain. After a month had second cortisone shot. Pain had gone down to feet. I then have Plantar Facilities. Have orthotics mold done for my shoes so that both feet will be level. This is all due to the nerve damage (strain) from having a leg shorter than the other.
You should see your rheumatologist & neurologist & find out.
Have a wonderful week. Hugs. πŸ˜†πŸ˜†πŸ˜†

August 21, 2017
A MyFibroTeam Member

@A MyFibroTeam Member - I don't know if it's part of Fibro but - - I have been having the same problem. I finally went to an orthopedic doctor who x-rayed the right knee and leg and all he saw was arthritis. He did give me a shot and it has helped.

It's a strange feeling.
As I said "I don't know if it is part of Fibro but I would check into it."

Take care.

THOUGHT FOR TODAY: Spending quiet time with God can bring quiet time from God.

8/21/17

August 21, 2017
A MyFibroTeam Member

I have that too i use a shower chair too

August 21, 2017

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