Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question πŸ’­
Enterprise, AL

Does anyone else struggle with their spouse not understanding or being caring about what you're going through...?

How do you handle feeling alone? Even my daughter seems to resent me.

I have had to rely on her to help me out with so much such as cooking and some cleaning since I can't most days.

August 16, 2017
 · 
Reactions

Answer Summary

Members opened up about the painful reality of feeling misunderstood and unsupported by spouses and family members who don't grasp the... Read more

Members opened up about the painful reality of feeling misunderstood and unsupported by spouses and family members who don't grasp the severity of chronic illness, with many sharing experiences of being called lazy, a druggie, or accused of faking symptoms despite working full-time jobs and pushing through constant pain. Several members offered practical advice, including having family read medical articles or books about fibromyalgia to help them understand it's a real condition, setting firm boundaries when hurtful comments become too damaging, and finding ways to connect with children even on low-energy days like coloring in bed together. A recurring theme was the deep loneliness of losing friendships and family support after diagnosis, the guilt of relying on children for help, and the courage it takes to prioritize one's own health and well-being even when it means walking away from toxic relationships.

A MyFibroTeam Member

I left you a message on your pg & I could not deal with that at all. What if the tables where turned? Was my one liner.

August 16, 2017 (edited)
A MyFibroTeam Member

Oh no Hun I know what you mean though and how you feel I've had a great group of friends who I went to junior school with we stayed friends through thick and thin yet as soon as I was diagnosed with my illnesses none of them wanted to know me I was classed as lazy lying making it up it all being in my head not one of the six friends was there for me apart from my mum my 18 year old son and my partner then my mum died and it was the biggest shock ever I had lost my best friend the one person I knew I could trust with anything and she was gone obviously at this point my so called friends came crawling as I assume they thought they had too they all came to her funeral as they all know her well yet after her death not one of them has been there for me and it breaks my heart as I've done absolutely nothing wrong to them apart from get sick so I couldn't do anything they were doing anymore and I was often too ill to go places with them so would have to cancel at the last minute and cause of this I've been without my friends and even recently my so called family have turned against me and I really really don't know what I've done to them to be treated the way they have treated me but they are losing out and will have regrets not me so your definitely not alone here if u ever want to chat sending soft hugs Suzanne πŸ€— πŸ€—πŸ€—

August 17, 2017
A MyFibroTeam Member

If you search Amazon there are children's books that help explain it. I'd been considering getting one myself. Not sure how old your child is. As far as husband, instead of all the blogs and memes from the internet, perhaps you could get him a great article written in a medical journal so it seems more realistic to him. If not, that kind of environment is not helpful to you at all. My last long term bf told me i 'wasn't what he signed up for ' and i should 'appreciate him sticking around '. So i left. And the difference emotionally is huge. I'm sure it's different when you have a child together though

August 16, 2017
A MyFibroTeam Member

My daughter will be 15 soon.. so I figure her helping is good for her. Preparing her for life.

Jessica, I have quite the cocktail of meds that has been helping . I have been pacing myself with all I do.

August 16, 2017
A MyFibroTeam Member

My daughter is the same way. I try to do as much as I can with her, even if it's just coloring in bed. They just want our attention and will try to get it in any way they can.

August 16, 2017

Related Questions

View All
A MyFibroTeam Member asked a question πŸ’­
Raleigh, NC

A MyFibroTeam Member asked a question πŸ’­
Marion, IA